Disability · Reg 1079049
Cystic Fibrosis Trust
Charity rating & review
74/100 Clarity Score · 3 stars · Charity Commission filings · How we score
Clarity score
Needs improvement
Quick answer
Is Cystic Fibrosis Trust a good charity?
Cystic Fibrosis Trust scores 74/100 (3 stars, Needs improvement) on CharityCompare's Clarity Score, calculated from its UK regulator filings. Its latest accounts year is 2025 (£12m total income, 78% of spending on charitable activities). This reflects financial transparency and stewardship on paper — not the real-world impact of its programmes. See the full breakdown.
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What does Cystic Fibrosis Trust do?
Cystic Fibrosis Trust is a registered charity (no. 1079049) working in disability across the United Kingdom. Its latest Charity Commission filing directs 78% of spending to charitable activities, holding roughly 7 months of reserves, and files its annual accounts on time. Reported income has been broadly stable over recent years. CharityCompare's Clarity Score rates the organisation only from public Charity Commission accounts — accountability, financial health, efficiency and community support — not the quality or impact of its programmes.
Summarised from public filings — Cystic Fibrosis Trust hasn't added its own description yet. Work here? Add it free →
In short: CYSTIC FIBROSIS TRUST scores 74 out of 100 (3 stars). 78% average program spend (3-year average). Review the pillar breakdown below.
What is Cystic Fibrosis Trust?
Cystic Fibrosis Trust has a Clarity Score of 74 out of 100 on CharityCompare (3 stars, Needs improvement). Charity Commission registration number 1079049. Status: Registered. Primary cause area: Disability. Latest accounts year 2025: total income £12m, with 78% of expenditure on charitable activities. Accounts filing: up to date. Reserves: approximately 7 months of operating costs. No major red flags from our filing review. Scores are independent and based on official filings — not a donation recommendation.
Data from Charity Commission register, last updated .
Overall score
74/100
3★ · Needs improvement
Cause spend
78%
3-yr avg · charitable activities
Accountability
100/100
Finance beacon
Income
£12m
Latest year 2025
Reserves
7 mo
Months of running costs
Accounts filing
On time
Charity Commission
£4.5 raised per £1 fundraising (3-yr avg) · 25% overhead · Website on register · Confidence: high
How does CYSTIC FIBROSIS TRUST compare?
Clarity Score percentile against similar UK charities — the share of peers CYSTIC FIBROSIS TRUST scores higher than.
Scores higher than 37% of 943 charities in its income band · 74/100 vs 77 peer average (marker).
Scores higher than 33% of 711 charities in this cause · 74/100 vs 79 peer average (marker).
How reliable is Cystic Fibrosis Trust's data?
- Source
- Charity Commission (England & Wales)
- Accounts year
- 2025
- Filing date
- Profile reviewed
High confidence — complete filing data
Scores reflect the latest annual accounts on the register. Clarity Score measures how clearly the charity accounts for money in those filings — not programme impact.
Contains public sector information licensed under the Open Government Licence v3.0. Sources: Charity Commission for England and Wales, Office of the Scottish Charity Regulator and Charity Commission for Northern Ireland. Open Government Licence v3.0 .
What is Cystic Fibrosis Trust's Beacon report?
Detailed accountability and finance metrics from UK regulator filings — structured for transparency in our four-beacon report.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
100/100
| Metric | Score | Value |
|---|---|---|
| Filing history (5 years) 100% on-time over five years = 15 pts · one late filing = 5 pts · two or more = 0 pts. | 100% | 15/15 pts |
| Trustee oversight Three or more trustees on the register = 15 pts, scaled down for fewer (governance red flag below three). | 100% | 12 trustees · 15/15 pts |
| Declared policies Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return. | 100% | 10/10 pts |
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
50/100
| Metric | Score | Value |
|---|---|---|
| Reserves (months of cash) 3–24 months = full marks, tapering on both sides · 0 months or 4+ years (hoarding) = 0 pts. | 100% | 7 months · 15/15 pts |
| Income stability / growth +20% or more over the window = 10 pts · flat = 5 pts · −20% or worse = 0 pts, scaled between. | 0% | 0/10 pts · 3-year average |
| Liabilities to assets 0% liabilities-to-assets = 5 pts, scaling down to 0 pts at 60%+ debt. | 0% | 58% · 0/5 pts |
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
65/100
| Metric | Score | Value |
|---|---|---|
| Program expense ratio 90%+ on charitable activities = full marks, scaling down to 0 pts at 50% or below. | 70% | 78% · 7/10 pts (3-year average) |
| Fundraising efficiency ≤10p to raise £1 = full marks, scaling down to 0 pts at 40p or above (fundraising cost ÷ income). | 60% | 22p per £1 income · 6/10 pts (3-year average) |
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
60/100
| Metric | Score | Value |
|---|---|---|
| Volunteer-to-staff ratio Volunteers at 2x staff or more = full marks · no volunteers = 0 pts, scaled between. | 60% | 162 volunteers / 133 staff · 6/10 pts |
What is Cystic Fibrosis Trust's Clarity Score?
74/100 total · Needs improvement · 3 of 5 stars
Four pillars (40 + 30 + 20 + 10 points) from Charity Commission filings — see methodology for full weightings.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
100/100
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
50/100
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
65/100
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
60/100
How much does Cystic Fibrosis Trust raise and spend?
Latest filed year 2025 · Source: Charity Commission filings
| Category | Amount | % of spend |
|---|---|---|
| Total income | £12m | — |
| Total expenditure | £14m | — |
| Charitable activities | £11m | 79% |
| Fundraising | £2.8m | 21% |
| Governance & admin | £580k | 4% |
Where does the money go?
Latest accounts (2025) · £14m spent
- Charitable activities79% · £11m
- Fundraising21% · £2.8m
- Governance4% · £580k
What trust indicators does Cystic Fibrosis Trust have?
Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported.
-
Accounts filed on time
up to date · last filing
-
Trustee board size (3–12)
12 trustees on the Charity Commission register
-
Workforce on register
133 employees · 162 volunteers (1:1 volunteer-to-staff)
Fundraising Regulator
Status not yet checked
Separate from our financial scores — shows whether the charity follows the Code of Fundraising Practice.
Check Fundraising Regulator →Official register
Reg 1079049
Full trustee list, accounts, and regulatory history on the Charity Commission.
View on Charity Commission →Trustees & officers
- Sean Collins since 2017
- Richard Hunt CBE Chair · since 2018
- Joanna Barrett since 2019
- Michelle Shore since 2019
- Martin Walshaw since 2021
- Sophie Pierce since 2021
- Sonya Trivedy since 2021
- Neil Priscott since 2023
- Jane Wainwright since 2023
- Dr Maya Desai since 2024
- Daniel Beever since 2025
- Anthony Hunter since 2025
How we score charities +
The Clarity Score is a 100-point rating from UK regulator filings (Charity Commission for England and Wales, OSCR and CCNI). Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10) — each scored on a continuous scale, not pass/fail cutoffs. A statutory inquiry sets the score to 0 automatically.
Accountability & Transparency
Scored from filings
40 points — filing history (15), trustee oversight (15, scaling up to a board of three or more), declared policies (10).
Financial Health
Scored from filings
30 points — reserves (15, full marks 3–24 months, tapering on both sides), income stability (10), liabilities to assets (5, scaling down as debt rises).
Financial Efficiency
Scored from filings
20 points — program expense ratio and fundraising cost, each on a graduated scale (not a single cutoff). Kept at 20% of the total: financial-ratio scoring alone is not a reliable effectiveness signal (see "why not just an overhead ratio?" below).
Community Support
Scored from filings
10 points — volunteer-to-staff ratio from Charity Commission workforce data, scaling continuously up to a 2:1 ratio.
Overall score
Sum of all pillar points. Display stars use the same bands as the labels: 90–100 → 5★ Exceptional; 75–89 → 4★ Good; 60–74 → 3★ Needs improvement; 1–59 → 2★ Poor; 0 → not rated.
How have Cystic Fibrosis Trust's finances changed over five years?
- Income
- Spending
- Cause spend
Values in £ thousands · Cause spend plotted only when the filing discloses a split · Source: Charity Commission accounts
What are the key facts about Cystic Fibrosis Trust?
- Overall score
- 74/100 (3★)
- Income
- £12m
- Cause spend
- 78% of expenditure
- Reg number
- 1079049
- Scope
- UK-wide
- Reserves
- 7 months
- Trustees
- 12
- Accounts year
- 2025
- Filing
- up to date
How does CYSTIC FIBROSIS TRUST compare, and where else can you look?
Where CYSTIC FIBROSIS TRUST sits
The causes this charity is classified under, and other charities working nearby.
Similar disability charities
Top-rated peers by CharityCompare score
- POLKA CHILDREN'S THEATRE LIMITED 100/100 · £3.6m
- TREWEN MEADOWS 100/100 · £1.4m
- CAMBRIDGE RAPE CRISIS CENTRE 100/100 · £916k
- Kent Neuro Therapy Centre Limited 100/100 · £858k
How can you share Cystic Fibrosis Trust's rating?
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How do you add Cystic Fibrosis Trust's rating to your site?
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Frequently asked questions
Common questions about Cystic Fibrosis Trust's rating, finances, and Charity Commission status.
Is Cystic Fibrosis Trust a good charity? +
Cystic Fibrosis Trust scores 74 out of 100 (3 stars — Needs improvement) on CharityCompare's Clarity Score, our independent read of its UK regulator filings. Around 78% of its spending goes to charitable activities and its accounts are up to date. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate.
Is Cystic Fibrosis Trust a legitimate charity? +
Yes — Cystic Fibrosis Trust is a legitimate registered charity (charity number 1079049). Verify it on the official register: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1079049. Registration proves status; Clarity Score then summarises filing transparency on paper, not programme impact.
What is Cystic Fibrosis Trust's charity number? +
Cystic Fibrosis Trust's charity number is 1079049. Check that number on the official register (Charity Commission, OSCR or CCNI) or this CharityCompare profile before you donate — scammers sometimes reuse real numbers on fake appeals.
What is Cystic Fibrosis Trust's charity rating? +
Cystic Fibrosis Trust scores 74 out of 100 on CharityCompare (3 stars — Needs improvement). The Clarity Score V1 sums four pillars from UK regulator filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10). Stars use the same bands as those labels — 90+ is 5★ Exceptional. It is not an impact ranking.
Does Cystic Fibrosis Trust have reviews and complaints? +
CharityCompare does not host public user reviews for Cystic Fibrosis Trust. Instead you get a filing-based Clarity Score, cause spend, reserves and red flags such as late accounts. For formal complaints about a charity, contact the Charity Commission, OSCR, CCNI or the Fundraising Regulator as appropriate.
How much of my donation reaches Cystic Fibrosis Trust? +
According to its 2025 regulator filing, 78% of Cystic Fibrosis Trust's total spending went to charitable activities (3-yr avg across disclosed years). That is the closest official figure to "how much of your donation reaches the cause" — it is an average across all spending in the filing, not a pound-by-pound breakdown of an individual gift.
What are Cystic Fibrosis Trust's overheads? +
According to its 2025 regulator filing, fundraising costs were about 22% of total expenditure and combined overheads (fundraising plus governance) were about 25% of total expenditure at Cystic Fibrosis Trust. The filings CharityCompare uses do not publish CEO or senior-staff pay, so we cannot say what Cystic Fibrosis Trust's chief executive is paid — where disclosure rules apply, senior pay appears in the trustees' annual report on the Charity Commission register.
How much income does Cystic Fibrosis Trust receive? +
Cystic Fibrosis Trust reported £12m total income in its 2025 accounts, based on UK regulator filings. Five-year trend: stable.
Are Cystic Fibrosis Trust's accounts up to date? +
Filing status: up to date (last filing 2026-06-24). CharityCompare flags late or missing accounts separately from the financial score.
Where is Cystic Fibrosis Trust based? +
Cystic Fibrosis Trust is listed at London · UK-wide · EC3A 5EB and operates UK-wide, focused on disability.
How does CharityCompare score Cystic Fibrosis Trust? +
We calculate a Clarity Score of 0–100 from four pillars in Cystic Fibrosis Trust's regulator filings: Accountability & Transparency (40 points — filing history, trustees, policies), Financial Health (30 — reserves, income trend, debt), Financial Efficiency (20 — cause spend and fundraising cost, on a graduated scale) and Community Support (10 — volunteer-to-staff ratio). An open statutory inquiry scores 0. The score measures reporting on paper, not programme impact. CharityCompare is free for donors, takes no commission on donations, and scores cannot be bought.
How often is this page updated? +
This profile was last updated on 17 July 2026 from the latest UK regulator data available to CharityCompare, and Cystic Fibrosis Trust's most recent accounts cover 2025. Scores and figures refresh whenever we re-ingest the register, so the page reflects our latest data pull rather than a one-off review.