Disability · Reg 1039549
Clarity score
Good
Charity accounts, evidence & financial rating
77/100 Clarity Score · 4 stars · Charity Commission filings · How we score
Register checked 4 October 2026 · latest accounts 2024
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Quick answer
The Tuberous Sclerosis Association scores 77/100 (4 stars, Good) on CharityCompare's Clarity Score, calculated from its UK regulator filings. Its latest accounts year is 2024 (£657k total income, 67% cause spend, latest year). This reflects financial transparency and stewardship on paper — not the real-world impact of its programmes. See the full breakdown.
Income
£657k
Accounts 2024-12-31
Spending
£468k
Accounts 2024-12-31
Charitable activities
67%
latest year · share of spending
Accounts filing
Late
Check register
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
Activities reported by the charity on the official register · extract . This is separate from the accounts data used for its rating.
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Accounts period 2024-01-01 to 2024-12-31 · Source: Charity Commission filings
| Category | Amount | % of spend |
|---|---|---|
| Total income | £657k | — |
| Total expenditure | £468k | — |
| Charitable activities | £315k | 67% |
| Fundraising | £154k | 33% |
| Reported governance | £0 | 0% |
Governance can already be allocated within other expenditure categories. It is not a separate measure of all administration costs; do not add these rows without checking the accounts notes.
Reported totals for 2024 compared with 2023. Changes can reflect the accounting period, restricted grants or restructuring as well as the charity’s work.
These are annual figures. The Clarity Score may use averages across several disclosed years. Source: official accounts.
Latest accounts (2024) · £468k spent
From the annual return
Answers The Tuberous Sclerosis Association gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. These are the charity's own disclosures, not part of the Clarity Score.
The Tuberous Sclerosis Association's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. The chief executive's pay is normally disclosed in the remuneration note of the trustees' annual report.
The register records The Tuberous Sclerosis Association as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
The Tuberous Sclerosis Association's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.
Source: Charity Commission register and annual return data, Open Government Licence v3.0. A blank answer in the return is shown as not reported, never as “no”.
Income rose 57% from £419k in 2020 to £657k in 2024; spending was £468k in 2024.
| Year | Income | Spending | Charitable activities |
|---|---|---|---|
| 2024 | £657k | £468k | £315k |
| 2023 | £362k | £325k | Not disclosed |
| 2022 | £285k | £359k | Not disclosed |
| 2021 | £443k | £476k | Not disclosed |
| 2020 | £419k | £614k | Not disclosed |
Cause spend is plotted only when the filing discloses a split · Source: Charity Commission filings
Financial context
Compare The Tuberous Sclerosis Association with 31 other disability charities in our detailed dataset: the same regulator, £500k–£1m income band and accounts ending in 2024. Each period covers 50–54 weeks. These are reference points, not targets or a ranking of impact.
Swipe across the table to see the peer median and coverage.
| Measure | This charity | Peer median | Peer coverage |
|---|---|---|---|
| Annual income | £657k | £693k | 31 of 31 |
| Annual spending | £468k | £620k | 31 of 31 |
| Charitable activities share | 67.1% | 83.4% | 28 of 31 |
The annual spending share can differ from the multi-year average shown elsewhere. Missing disclosures are excluded, never counted as zero. We show a median only with at least ten peer disclosures. Different year-end months, restricted funding and delivery models can still limit comparisons.
The share of each group scoring at or below The Tuberous Sclerosis Association, including tied scores. A group matched on cause, income band and accounts year appears when at least ten records qualify. Broader groups below may mix reporting periods and operating models. Groups include this charity; percentiles measure our financial rating, not impact.
Scores at or above 64% of 33 charities with the same primary cause, income band and latest accounts year · 77/100 vs 76 peer average.
Scores at or above 43% of 2,127 charities in its income band · 77/100 vs 78 peer average.
Scores at or above 48% of 702 charities in this cause · 77/100 vs 76 peer average.
The causes this charity is classified under, and other charities working nearby.
Top-rated peers by CharityCompare score
Evidence and interpretation
In 2024, reported income was £656,551 and expenditure was £468,469. Income exceeded expenditure by £188,082. This annual balance is not the charity’s available cash or unrestricted reserves.
Income rose 81.6% compared with 2023. Read the accounts notes for restricted grants, legacies and one-off receipts before treating the movement as a trend.
Calculated from our dated accounts dataset, refreshed 2026-09-06. This is not an audit or a manual review of every filing. Original register and accounts · How calculations work.
Find the right support
Reported beneficiaries: People With Disabilities.
How it works: Makes Grants To Individuals; Makes Grants To Organisations; Provides Human Resources; Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Use the official contact details to check eligibility, referrals, waiting lists and current service coverage. Broad register classifications and a contact address do not confirm that a particular service is available to you.
Explore source-checked support routesClassifications supplied to the register; extract 2026-10-04. Register contact and activity details · Website listed for this charity
Look beyond the score
We have not added a source-checked programme outcome for this charity. That is a gap in this profile, not evidence that the charity has no impact. Its annual report may contain results that have not been assessed here.
Reported grants to institutions: £0 (2024-12-31). This is spending reported in the annual return, not a measure of beneficiary outcomes or an open grant opportunity. It may already be included in charitable expenditure. Check the source accounts.
Counts of services delivered describe activity. They do not by themselves establish lasting change, what would have happened without the programme, or cost-effectiveness. Results with different definitions, populations or years should not be ranked against each other.
Detailed accountability and finance metrics from UK regulator filings — structured for transparency in our four-beacon report.
Baseline trust from filing discipline, board oversight, and declared governance policies.
68/100
| Metric | Score | Value |
|---|---|---|
| Filing history (5 years) No recorded lateness in available history = 15 pts · one late filing = 5 pts · two or more or unknown status = 0 pts. Missing data is not proof of late filing. | 33% | 5/15 pts |
| Trustee oversight Three or more trustees on the register = 15 pts, scaled down for fewer (governance red flag below three). | 100% | 7 trustees · 15/15 pts |
| Declared policies Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return. | 70% | 7/10 pts |
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
100/100
| Metric | Score | Value |
|---|---|---|
| Reserves (months of expenditure) 3–24 months = full marks, tapering on both sides · 0 months or 4+ years = 0 pts. Reserves are not necessarily cash; needs vary by operating model. | 100% | 22 months · 15/15 pts |
| Income stability / growth +20% or more over the window = 10 pts · flat = 5 pts · −20% or worse = 0 pts, scaled between. | 100% | 10/10 pts · 3-year average |
| Liabilities to assets 0% liabilities-to-assets = 5 pts, scaling down to 0 pts at 60%+ debt. | 100% | 2% · 5/5 pts |
How efficiently funds reach the cause — program spend and fundraising cost ratios.
50/100
| Metric | Score | Value |
|---|---|---|
| Program expense ratio 90%+ on charitable activities = full marks, scaling down to 0 pts at 50% or below. | 40% | 67% · 4/10 pts (Latest year) |
| Fundraising efficiency ≤10p to raise £1 = full marks, scaling down to 0 pts at 40p or above (fundraising cost ÷ income). | 60% | 23p per £1 income · 6/10 pts (Latest year, disclosed years) |
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
100/100
| Metric | Score | Value |
|---|---|---|
| Volunteer-to-staff ratio Volunteers at 2x staff or more = full marks · no volunteers = 0 pts, scaled between. | 100% | 40 volunteers / 9 staff · 10/10 pts |
Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported.
Accounts filed on time
Filing status: late
Trustee board size (3–12)
7 trustees on the Charity Commission register
Workforce on register
9 employees · 40 volunteers (4:1 volunteer-to-staff)
Fundraising Regulator
Status not yet checked
Separate from our financial scores. Registration records a commitment to the Code of Fundraising Practice; it does not certify every fundraising activity.
Check Fundraising Regulator →Official register
Reg 1039549
Full trustee list, accounts, and regulatory history on the Charity Commission.
View on Charity Commission →Medium confidence — some data missing or late
Scores reflect the accounts in our dated data extract. The live register may contain newer filings. Clarity Score measures how clearly the charity accounts for money in those filings — not programme impact.
Check the current register entry · Report a data correction
Financial source extract: 2026-09-06. Organisation identifier: 1039549. Method version: 1.1. View method changes.
Contains public sector information licensed under the Open Government Licence v3.0. Sources: Charity Commission for England and Wales, Office of the Scottish Charity Regulator and Charity Commission for Northern Ireland. Open Government Licence v3.0 .
Your donation decision
Check 1039549 on the official register. A real charity number alone does not prove that a fundraiser or appeal is authentic.
Verify the registration →Our latest accounts data covers 2024. Compare the accounts period, spending and reserves. An administration cost ratio alone cannot tell you how effective a charity is.
Explore the financial evidence →Read the trustees’ annual report for activities, outcomes and limitations. The Clarity Score measures public reporting; it does not establish the impact of a donation.
How to read charity accounts →Compare up to four charities, check the dates behind their figures, and decide which work you want to support. Complete your donation through a verified charity channel.
Start a comparison with The Tuberous Sclerosis Association →The Clarity Score is a 100-point rating from UK regulator filings (Charity Commission for England and Wales, OSCR and CCNI). Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10) — each scored on a continuous scale, not pass/fail cutoffs. A statutory inquiry sets the score to 0 automatically.
Accountability & Transparency
Scored from filings
40 points — filing history (15), trustee oversight (15, scaling up to a board of three or more), declared policies (10).
Financial Health
Scored from filings
30 points — reserves (15, full marks 3–24 months, tapering on both sides), income stability (10), liabilities to assets (5, scaling down as debt rises).
Financial Efficiency
Scored from filings
20 points — program expense ratio and fundraising cost, each on a graduated scale (not a single cutoff). Kept at 20% of the total: financial-ratio scoring alone is not a reliable effectiveness signal (see "why not just an overhead ratio?" below).
Community Support
Scored from filings
10 points — volunteer-to-staff ratio from Charity Commission workforce data, scaling continuously up to a 2:1 ratio.
Overall score
Sum of all pillar points. Display stars use the same bands as the labels: 90–100 → 5★ Exceptional; 75–89 → 4★ Good; 60–74 → 3★ Needs improvement; 1–59 → 2★ Poor; 0 → not rated.
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Common questions about The Tuberous Sclerosis Association's rating, finances, and Charity Commission status.
The Tuberous Sclerosis Association scores 77 out of 100 (4 stars — Good) on CharityCompare's Clarity Score, our independent read of its UK regulator filings. Around 67% of its spending goes to charitable activities (latest year) and its accounts are late. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate.
The register data used for this profile lists The Tuberous Sclerosis Association as a registered charity (charity number 1039549). Verify it on the official register: https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1039549&subId=0. Check the current entry and the identity of anyone requesting money. Registration does not verify a particular appeal; Clarity Score summarises filing transparency, not programme impact.
The Tuberous Sclerosis Association's charity number is 1039549. Check that number on the official register (Charity Commission, OSCR or CCNI) or this CharityCompare profile before you donate — scammers sometimes reuse real numbers on fake appeals.
The Tuberous Sclerosis Association scores 77 out of 100 on CharityCompare (4 stars — Good). The Clarity Score (method v1.1) sums four pillars from UK regulator filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10). Stars use the same bands as those labels — 90+ is 5★ Exceptional. It is not an impact ranking.
CharityCompare does not host public user reviews for The Tuberous Sclerosis Association. Instead you get a filing-based Clarity Score, cause spend, reserves and red flags such as late accounts (2 red flags on this profile: late accounts filing; high fundraising costs). For formal complaints about a charity, contact the Charity Commission, OSCR, CCNI or the Fundraising Regulator as appropriate.
Across the recent disclosed accounts used for this score, 67% of The Tuberous Sclerosis Association's total spending went to charitable activities. That is the closest official figure to "how much of your donation reaches the cause" — it is an average across all spending in the filing, not a pound-by-pound breakdown of an individual gift.
Across the recent disclosed accounts used for this score, fundraising costs were about 33% of total expenditure and fundraising plus separately reported governance figures amount to about 33% of expenditure (2024); these categories can overlap, so this is not a distinct total of all administration costs at The Tuberous Sclerosis Association. The Tuberous Sclerosis Association's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. Individual salaries, including the chief executive's, are disclosed in the trustees' annual report rather than on the register.
The Tuberous Sclerosis Association reported £657k total income in its 2024 accounts, based on UK regulator filings. Five-year trend: growing.
Filing status: late (last filing 2025-10-15). CharityCompare flags late or missing accounts separately from the financial score.
The Tuberous Sclerosis Association's registered contact address is in Exeter (EX2 5AZ). It tells the regulator it operates in England and Wales, Scotland, Northern Ireland, with a focus on disability.
The Charity Commission register does not name individual salaries. The Tuberous Sclerosis Association's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
The register records The Tuberous Sclerosis Association as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
The Tuberous Sclerosis Association's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.
The Tuberous Sclerosis Association was entered on the register on 14 September 1994. It is also a company registered at Companies House (company number 02900107).
We calculate a Clarity Score of 0–100 from four pillars in The Tuberous Sclerosis Association's regulator filings: Accountability & Transparency (40 points — filing history, trustees, policies), Financial Health (30 — reserves, income trend, debt), Financial Efficiency (20 — cause spend and fundraising cost, on a graduated scale) and Community Support (10 — volunteer-to-staff ratio). An open statutory inquiry scores 0. The score measures reporting on paper, not programme impact. CharityCompare is free for donors, takes no commission on donations, and scores cannot be bought.
This profile was last updated on 6 September 2026 from the latest UK regulator data available to CharityCompare, and The Tuberous Sclerosis Association's most recent accounts cover 2024. Scores and figures refresh whenever we re-ingest the register, so the page reflects our latest data pull rather than a one-off review.