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Motor Neurone Disease Association

90 /100

Clarity score

Exceptional

Charity accounts, evidence & financial rating

90/100 Clarity Score · 5 stars · Charity Commission filings · How we score

Register checked 4 October 2026 · latest accounts 2024

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Quick answer

Is Motor Neurone Disease Association a good charity?

Motor Neurone Disease Association scores 90/100 (5 stars, Exceptional) on CharityCompare's Clarity Score, calculated from its UK regulator filings. Its latest accounts year is 2024 (£41m total income, 71% cause spend, 3-yr avg). This reflects financial transparency and stewardship on paper — not the real-world impact of its programmes. See the full breakdown.

Income

£41m

Accounts 2024-12-31

Spending

£34m

Accounts 2024-12-31

Charitable activities

71%

3-yr avg · share of spending

Accounts filing

On time

Charity Commission

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Northampton · UK-wide · NN3 6BJ Reg 294354 Registered charity Official website Charity Commission register

What does Motor Neurone Disease Association do?

The MND Association is the only national charity in England, Wales and Northern Ireland dedicated to improving care and support for people affected by MND, funding and improving research, and campaigning and raising awareness so that the needs of people with MND are addressed by society. Visit www.mndassociation.org

Activities reported by the charity on the official register · extract . This is separate from the accounts data used for its rating.

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How much does Motor Neurone Disease Association raise and spend?

Accounts period 2024-01-01 to 2024-12-31 · Source: Charity Commission filings

Motor Neurone Disease Association revenue and expenses for 2024
Category Amount % of spend
Total income £41m —
Total expenditure £34m —
Charitable activities £26m 78%
Fundraising £7.6m 22%
Reported governance £124k 0%

Governance can already be allocated within other expenditure categories. It is not a separate measure of all administration costs; do not add these rows without checking the accounts notes.

What changed in Motor Neurone Disease Association’s latest accounts?

Reported totals for 2024 compared with 2023. Changes can reflect the accounting period, restricted grants or restructuring as well as the charity’s work.

Income change
+7.6%
£38m → £41m
Spending change
+26.7%
£27m → £34m
Charitable activities share
+10.9 pp
67% → 78% · percentage points

These are annual figures. The Clarity Score may use averages across several disclosed years. Source: official accounts.

78%On charitable activities

Where does the money go?

Latest accounts (2024) · £34m spent

  • Charitable activities78%
  • Fundraising22%

Charities usually allocate governance costs across their other spending categories, and these reported figures add up to more than total spending, so governance is not drawn as a separate slice. The accounts table shows it separately.

From the annual return

What does Motor Neurone Disease Association pay its staff, and where does its money come from?

Answers Motor Neurone Disease Association gave in its annual return to the Charity Commission for the year ending 31 December 2024, plus its register entry. These are the charity's own disclosures, not part of the Clarity Score.

How much are Motor Neurone Disease Association's highest-paid staff paid?

Motor Neurone Disease Association's annual return for the year ending 31 December 2024 reports 24 employees paid more than £60,000, including 2 employees paid more than £100,000. The highest reported pay band is £140,001–£150,000 (1 employee).

Motor Neurone Disease Association employees paid over £60,000, by salary band
Salary bandEmployees
£140,001–£150,000 1
£100,001–£110,000 1
£90,001–£100,000 3
£80,001–£90,000 1
£70,001–£80,000 1
£60,001–£70,000 17

The register reports headcounts in salary bands, not names. The chief executive's pay is normally disclosed in the remuneration note of the trustees' annual report.

Where does Motor Neurone Disease Association's money come from?

Motor Neurone Disease Association reported £41m total income for the year ending 31 December 2024. The largest sources were donations and legacies £36m (87%), investments £1.8m (4%), trading and fundraising events £1.8m (4%). Legacies (gifts in wills) contributed £11m.

  • Donations and legacies £36m · 87%
  • Investments £1.8m · 4%
  • Trading and fundraising events £1.8m · 4%
  • Other income £1.7m · 4%

Cash at year end: £27m · unrestricted funds: £42m · restricted funds: £9m. Restricted funds can only be spent on purposes set by the donor.

Can I claim Gift Aid, and are the trustees paid?

The register records Motor Neurone Disease Association as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid

Motor Neurone Disease Association's annual return for the year ending 31 December 2024 reports that no trustee received remuneration or other benefits from the charity.

Registration details

Registered as a charity
Company number
02007023 (Companies House)
Also known as
MND Association; Mnda
Where it says it operates
Throughout England and Wales · Northern Ireland

Source: Charity Commission register and annual return data, Open Government Licence v3.0. A blank answer in the return is shown as not reported, never as “no”.

How have Motor Neurone Disease Association's finances changed over five years?

Income rose 105% from £20m in 2020 to £41m in 2024; spending was £34m in 2024.

£0 £20m £40m £60m £80m 2020 2021 2022 2023 2024 Income 2020: £20m Spending 2020: £16m Cause spend 2020: £9.9m Income 2021: £29m Spending 2021: £18m Cause spend 2021: £12m Income 2022: £30m Spending 2022: £23m Cause spend 2022: £16m Income 2023: £38m Spending 2023: £27m Cause spend 2023: £18m Income 2024: £41m Spending 2024: £34m Cause spend 2024: £26m
  • Income
  • Spending
  • Cause spend
Motor Neurone Disease Association income and spending by accounts year
Year Income Spending Charitable activities
2024 £41m £34m £26m
2023 £38m £27m £18m
2022 £30m £23m £16m
2021 £29m £18m £12m
2020 £20m £16m £9.9m

Cause spend is plotted only when the filing discloses a split · Source: Charity Commission filings

How does Motor Neurone Disease Association compare?

The share of each group scoring at or below Motor Neurone Disease Association, including tied scores. A group matched on cause, income band and accounts year appears when at least ten records qualify. Broader groups below may mix reporting periods and operating models. Groups include this charity; percentiles measure our financial rating, not impact.

Same cause, income band and accounts year (2024) 100thpercentile

Scores at or above 100% of 10 charities with the same primary cause, income band and latest accounts year · 90/100 vs 75 peer average.

Income band (£10m+) 92ndpercentile

Scores at or above 92% of 930 charities in its income band · 90/100 vs 77 peer average.

Disability charities 81stpercentile

Scores at or above 81% of 702 charities in this cause · 90/100 vs 76 peer average.

Where Motor Neurone Disease Association sits

The causes this charity is classified under, and other charities working nearby.

Evidence and interpretation

What the evidence says about Motor Neurone Disease Association

In 2024, reported income was £40,786,703 and expenditure was £33,944,213. Income exceeded expenditure by £6,842,490. This annual balance is not the charity’s available cash or unrestricted reserves.

More financial context

Income rose 7.6% compared with 2023. Read the accounts notes for restricted grants, legacies and one-off receipts before treating the movement as a trend.

Calculated from our dated accounts dataset, refreshed 2026-09-06. This is not an audit or a manual review of every filing. Original register and accounts · How calculations work.

Find the right support

Who it supports and how to access its work

Reported beneficiaries: People With Disabilities.

How it works: Makes Grants To Individuals; Makes Grants To Organisations; Provides Human Resources; Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.

Use the official contact details to check eligibility, referrals, waiting lists and current service coverage. Broad register classifications and a contact address do not confirm that a particular service is available to you.

Explore source-checked support routes

Classifications supplied to the register; extract 2026-10-04. Register contact and activity details · Website listed for this charity

Look beyond the score

Results and impact evidence

We have not added a source-checked programme outcome for this charity. That is a gap in this profile, not evidence that the charity has no impact. Its annual report may contain results that have not been assessed here.

Reported grants to institutions: £10,412,141 (2024-12-31). This is spending reported in the annual return, not a measure of beneficiary outcomes or an open grant opportunity. It may already be included in charitable expenditure. Check the source accounts.

What these results can tell you

Counts of services delivered describe activity. They do not by themselves establish lasting change, what would have happened without the programme, or cost-effectiveness. Results with different definitions, populations or years should not be ranked against each other.

How to judge charity impact evidence

What is Motor Neurone Disease Association's Beacon report?

Detailed accountability and finance metrics from UK regulator filings — structured for transparency in our four-beacon report.

Accountability & Transparency

Baseline trust from filing discipline, board oversight, and declared governance policies.

100/100

Accountability & Transparency metrics for Motor Neurone Disease Association
Metric Score Value
Filing history (5 years)

No recorded lateness in available history = 15 pts · one late filing = 5 pts · two or more or unknown status = 0 pts. Missing data is not proof of late filing.

100% 15/15 pts
Trustee oversight

Three or more trustees on the register = 15 pts, scaled down for fewer (governance red flag below three).

100% 10 trustees · 15/15 pts
Declared policies

Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return.

100% 10/10 pts

Financial Health

Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.

90/100

Financial Health metrics for Motor Neurone Disease Association
Metric Score Value
Reserves (months of expenditure)

3–24 months = full marks, tapering on both sides · 0 months or 4+ years = 0 pts. Reserves are not necessarily cash; needs vary by operating model.

100% 22 months · 15/15 pts
Income stability / growth

+20% or more over the window = 10 pts · flat = 5 pts · −20% or worse = 0 pts, scaled between.

100% 10/10 pts · 3-year average
Liabilities to assets

0% liabilities-to-assets = 5 pts, scaling down to 0 pts at 60%+ debt.

40% 34% · 2/5 pts

Financial Efficiency

How efficiently funds reach the cause — program spend and fundraising cost ratios.

65/100

Financial Efficiency metrics for Motor Neurone Disease Association
Metric Score Value
Program expense ratio

90%+ on charitable activities = full marks, scaling down to 0 pts at 50% or below.

50% 71% · 5/10 pts (3-year average)
Fundraising efficiency

≤10p to raise £1 = full marks, scaling down to 0 pts at 40p or above (fundraising cost ÷ income).

80% 15p per £1 income · 8/10 pts (3-year average, disclosed years)

Community Support

Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.

100/100

Community Support metrics for Motor Neurone Disease Association
Metric Score Value
Volunteer-to-staff ratio

Volunteers at 2x staff or more = full marks · no volunteers = 0 pts, scaled between.

100% 1,300 volunteers / 238 staff · 10/10 pts

How we calculate beacon scores →

What trust indicators does Motor Neurone Disease Association have?

Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported.

  • Accounts filed on time

    up to date · last filing

  • Trustee board size (3–12)

    10 trustees on the Charity Commission register

  • Workforce on register

    238 employees · 1,300 volunteers (5:1 volunteer-to-staff)

Fundraising Regulator

Not listed as member

Separate from our financial scores. Registration records a commitment to the Code of Fundraising Practice; it does not certify every fundraising activity.

Check Fundraising Regulator →

Official register

Reg 294354

Full trustee list, accounts, and regulatory history on the Charity Commission.

View on Charity Commission →

Trustees & officers

  • Shaun Gerard Mc Gee since 2020
  • James MARSHALL since 2021
  • Kirrie Todd since 2022
  • Ian Lev since 2022
  • Alan Philip Graham MBE since 2024
  • Eleanor Dalley since 2025
  • James Marc Barlow since 2025
  • Susan Plummer since 2025
  • Craig Jones since 2025
  • Anna Walker since 2026

How reliable is Motor Neurone Disease Association's data?

Source
Charity Commission (England & Wales)
Accounts year
2024
Filing date
Data refreshed

High confidence — complete filing data

Scores reflect the accounts in our dated data extract. The live register may contain newer filings. Clarity Score measures how clearly the charity accounts for money in those filings — not programme impact.

Check the current register entry · Report a data correction

Financial source extract: 2026-09-06. Organisation identifier: 294354. Method version: 1.1. View method changes.

Contains public sector information licensed under the Open Government Licence v3.0. Sources: Charity Commission for England and Wales, Office of the Scottish Charity Regulator and Charity Commission for Northern Ireland. Open Government Licence v3.0 .

Your donation decision

What should you check before donating to Motor Neurone Disease Association?

  1. 1. Match the name and charity number

    Check 294354 on the official register. A real charity number alone does not prove that a fundraiser or appeal is authentic.

    Verify the registration →
  2. 2. Read the accounts in context

    Our latest accounts data covers 2024. Compare the accounts period, spending and reserves. An administration cost ratio alone cannot tell you how effective a charity is.

    Explore the financial evidence →
  3. 3. Look for evidence of results

    Read the trustees’ annual report for activities, outcomes and limitations. The Clarity Score measures public reporting; it does not establish the impact of a donation.

    How to read charity accounts →
  4. 4. Compare charities serving your cause

    Compare up to four charities, check the dates behind their figures, and decide which work you want to support. Complete your donation through a verified charity channel.

    Start a comparison with Motor Neurone Disease Association →
How we score charities +

The Clarity Score is a 100-point rating from UK regulator filings (Charity Commission for England and Wales, OSCR and CCNI). Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10) — each scored on a continuous scale, not pass/fail cutoffs. A statutory inquiry sets the score to 0 automatically.

Full methodology →

Accountability & Transparency

Scored from filings

40 points — filing history (15), trustee oversight (15, scaling up to a board of three or more), declared policies (10).

Financial Health

Scored from filings

30 points — reserves (15, full marks 3–24 months, tapering on both sides), income stability (10), liabilities to assets (5, scaling down as debt rises).

Financial Efficiency

Scored from filings

20 points — program expense ratio and fundraising cost, each on a graduated scale (not a single cutoff). Kept at 20% of the total: financial-ratio scoring alone is not a reliable effectiveness signal (see "why not just an overhead ratio?" below).

Community Support

Scored from filings

10 points — volunteer-to-staff ratio from Charity Commission workforce data, scaling continuously up to a 2:1 ratio.

Overall score

Sum of all pillar points. Display stars use the same bands as the labels: 90–100 → 5★ Exceptional; 75–89 → 4★ Good; 60–74 → 3★ Needs improvement; 1–59 → 2★ Poor; 0 → not rated.

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Frequently asked questions

Common questions about Motor Neurone Disease Association's rating, finances, and Charity Commission status.

Is Motor Neurone Disease Association a good charity? +

Motor Neurone Disease Association scores 90 out of 100 (5 stars — Exceptional) on CharityCompare's Clarity Score, our independent read of its UK regulator filings. Around 71% of its spending goes to charitable activities (3-yr avg) and its accounts are up to date. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate.

Is Motor Neurone Disease Association a legitimate charity? +

The register data used for this profile lists Motor Neurone Disease Association as a registered charity (charity number 294354). Verify it on the official register: https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=294354&subId=0. Check the current entry and the identity of anyone requesting money. Registration does not verify a particular appeal; Clarity Score summarises filing transparency, not programme impact.

What is Motor Neurone Disease Association's charity number? +

Motor Neurone Disease Association's charity number is 294354. Check that number on the official register (Charity Commission, OSCR or CCNI) or this CharityCompare profile before you donate — scammers sometimes reuse real numbers on fake appeals.

What is Motor Neurone Disease Association's charity rating? +

Motor Neurone Disease Association scores 90 out of 100 on CharityCompare (5 stars — Exceptional). The Clarity Score (method v1.1) sums four pillars from UK regulator filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10). Stars use the same bands as those labels — 90+ is 5★ Exceptional. It is not an impact ranking.

Does Motor Neurone Disease Association have reviews and complaints? +

CharityCompare does not host public user reviews for Motor Neurone Disease Association. Instead you get a filing-based Clarity Score, cause spend, reserves and red flags such as late accounts (none flagged on this profile). For formal complaints about a charity, contact the Charity Commission, OSCR, CCNI or the Fundraising Regulator as appropriate.

How much of my donation reaches Motor Neurone Disease Association? +

Across the recent disclosed accounts used for this score, 71% of Motor Neurone Disease Association's total spending went to charitable activities (3-yr avg across disclosed years). That is the closest official figure to "how much of your donation reaches the cause" — it is an average across all spending in the filing, not a pound-by-pound breakdown of an individual gift.

What are Motor Neurone Disease Association's overheads? +

Across the recent disclosed accounts used for this score, fundraising costs were about 19% of total expenditure and fundraising plus separately reported governance figures amount to about 20% of expenditure (2022–2024, disclosed years); these categories can overlap, so this is not a distinct total of all administration costs at Motor Neurone Disease Association. Motor Neurone Disease Association's annual return for the year ending 31 December 2024 reports 24 employees paid more than £60,000, including 2 employees paid more than £100,000. The highest reported pay band is £140,001–£150,000 (1 employee). Individual salaries, including the chief executive's, are disclosed in the trustees' annual report rather than on the register.

How much income does Motor Neurone Disease Association receive? +

Motor Neurone Disease Association reported £41m total income in its 2024 accounts, based on UK regulator filings. Five-year trend: growing.

Are Motor Neurone Disease Association's accounts up to date? +

Filing status: up to date (last filing 2025-09-15). CharityCompare flags late or missing accounts separately from the financial score.

Where is Motor Neurone Disease Association based? +

Motor Neurone Disease Association's registered contact address is in Northampton (NN3 6BJ). It tells the regulator it operates in England and Wales, Northern Ireland, with a focus on disability.

How much is Motor Neurone Disease Association's chief executive paid? +

The Charity Commission register does not name individual salaries. Motor Neurone Disease Association's annual return for the year ending 31 December 2024 reports 24 employees paid more than £60,000, including 2 employees paid more than £100,000. The highest reported pay band is £140,001–£150,000 (1 employee). Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.

Where does Motor Neurone Disease Association's money come from? +

Motor Neurone Disease Association reported £41m total income for the year ending 31 December 2024. The largest sources were donations and legacies £36m (87%), investments £1.8m (4%), trading and fundraising events £1.8m (4%). Legacies (gifts in wills) contributed £11m.

Can I claim Gift Aid on a donation to Motor Neurone Disease Association? +

The register records Motor Neurone Disease Association as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.

Are Motor Neurone Disease Association's trustees paid? +

Motor Neurone Disease Association's annual return for the year ending 31 December 2024 reports that no trustee received remuneration or other benefits from the charity.

When was Motor Neurone Disease Association registered as a charity? +

Motor Neurone Disease Association was entered on the register on 14 May 1986. It is also a company registered at Companies House (company number 02007023).

How does CharityCompare score Motor Neurone Disease Association? +

We calculate a Clarity Score of 0–100 from four pillars in Motor Neurone Disease Association's regulator filings: Accountability & Transparency (40 points — filing history, trustees, policies), Financial Health (30 — reserves, income trend, debt), Financial Efficiency (20 — cause spend and fundraising cost, on a graduated scale) and Community Support (10 — volunteer-to-staff ratio). An open statutory inquiry scores 0. The score measures reporting on paper, not programme impact. CharityCompare is free for donors, takes no commission on donations, and scores cannot be bought.

How often is this page updated? +

This profile was last updated on 6 September 2026 from the latest UK regulator data available to CharityCompare, and Motor Neurone Disease Association's most recent accounts cover 2024. Scores and figures refresh whenever we re-ingest the register, so the page reflects our latest data pull rather than a one-off review.