Poverty relief · Reg 296453
Huntingtons Disease Association
Charity rating & review
97/100 Clarity Score · 5 stars · Charity Commission filings · How we score
Clarity score
Exceptional
Quick answer
Is Huntingtons Disease Association a good charity?
Huntingtons Disease Association scores 97/100 (5 stars, Exceptional) on CharityCompare's Clarity Score, calculated from its UK regulator filings. Its latest accounts year is 2025 (£2.5m total income, 87% of spending on charitable activities). This reflects financial transparency and stewardship on paper — not the real-world impact of its programmes. See the full breakdown.
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What does Huntingtons Disease Association do?
Huntingtons Disease Association is a registered charity (no. 296453) working in poverty relief across the United Kingdom. Its latest Charity Commission filing directs 87% of spending to charitable activities, holding roughly 8 months of reserves, and files its annual accounts on time. Reported income has been growing (≈8% a year). CharityCompare's Clarity Score rates the organisation only from public Charity Commission accounts — accountability, financial health, efficiency and community support — not the quality or impact of its programmes.
Summarised from public filings — Huntingtons Disease Association hasn't added its own description yet. Work here? Add it free →
In short: HUNTINGTONS DISEASE ASSOCIATION scores 97 out of 100 (5 stars). 87% average program spend (3-year average). Filings are up to date with no major concerns.
What is Huntingtons Disease Association?
Huntingtons Disease Association has a Clarity Score of 97 out of 100 on CharityCompare (5 stars, Exceptional). Charity Commission registration number 296453. Status: Registered. Primary cause area: Poverty relief. Latest accounts year 2025: total income £2.5m, with 87% of expenditure on charitable activities. Accounts filing: up to date. Reserves: approximately 8 months of operating costs. No major red flags from our filing review. Scores are independent and based on official filings — not a donation recommendation.
Data from Charity Commission register, last updated .
Overall score
97/100
5★ · Exceptional
Cause spend
87%
3-yr avg · charitable activities
Accountability
100/100
Finance beacon
Income
£2.5m
Latest year 2025
Reserves
8 mo
Months of running costs
Accounts filing
On time
Charity Commission
£7.5 raised per £1 fundraising (3-yr avg) · 13% overhead · Website on register · Confidence: high
How does HUNTINGTONS DISEASE ASSOCIATION compare?
Clarity Score percentile against similar UK charities — the share of peers HUNTINGTONS DISEASE ASSOCIATION scores higher than.
Scores higher than 97% of 2,776 charities in its income band · 97/100 vs 78 peer average (marker).
Scores higher than 96% of 1,502 charities in this cause · 97/100 vs 78 peer average (marker).
How reliable is Huntingtons Disease Association's data?
- Source
- Charity Commission (England & Wales)
- Accounts year
- 2025
- Filing date
- Profile reviewed
High confidence — complete filing data
Scores reflect the latest annual accounts on the register. Clarity Score measures how clearly the charity accounts for money in those filings — not programme impact.
Contains public sector information licensed under the Open Government Licence v3.0. Sources: Charity Commission for England and Wales, Office of the Scottish Charity Regulator and Charity Commission for Northern Ireland. Open Government Licence v3.0 .
What is Huntingtons Disease Association's Beacon report?
Detailed accountability and finance metrics from UK regulator filings — structured for transparency in our four-beacon report.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
100/100
| Metric | Score | Value |
|---|---|---|
| Filing history (5 years) 100% on-time over five years = 15 pts · one late filing = 5 pts · two or more = 0 pts. | 100% | 15/15 pts |
| Trustee oversight Three or more trustees on the register = 15 pts, scaled down for fewer (governance red flag below three). | 100% | 10 trustees · 15/15 pts |
| Declared policies Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return. | 100% | 10/10 pts |
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
97/100
| Metric | Score | Value |
|---|---|---|
| Reserves (months of cash) 3–24 months = full marks, tapering on both sides · 0 months or 4+ years (hoarding) = 0 pts. | 100% | 8 months · 15/15 pts |
| Income stability / growth +20% or more over the window = 10 pts · flat = 5 pts · −20% or worse = 0 pts, scaled between. | 100% | 10/10 pts · 3-year average |
| Liabilities to assets 0% liabilities-to-assets = 5 pts, scaling down to 0 pts at 60%+ debt. | 80% | 7% · 4/5 pts |
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
90/100
| Metric | Score | Value |
|---|---|---|
| Program expense ratio 90%+ on charitable activities = full marks, scaling down to 0 pts at 50% or below. | 90% | 87% · 9/10 pts (3-year average) |
| Fundraising efficiency ≤10p to raise £1 = full marks, scaling down to 0 pts at 40p or above (fundraising cost ÷ income). | 90% | 13p per £1 income · 9/10 pts (3-year average) |
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
100/100
| Metric | Score | Value |
|---|---|---|
| Volunteer-to-staff ratio Volunteers at 2x staff or more = full marks · no volunteers = 0 pts, scaled between. | 100% | 189 volunteers / 51 staff · 10/10 pts |
What is Huntingtons Disease Association's Clarity Score?
97/100 total · Exceptional · 5 of 5 stars
Four pillars (40 + 30 + 20 + 10 points) from Charity Commission filings — see methodology for full weightings.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
100/100
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
97/100
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
90/100
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
100/100
How much does Huntingtons Disease Association raise and spend?
Latest filed year 2025 · Source: Charity Commission filings
| Category | Amount | % of spend |
|---|---|---|
| Total income | £2.5m | — |
| Total expenditure | £2.7m | — |
| Charitable activities | £2.4m | 88% |
| Fundraising | £319k | 12% |
| Governance & admin | £12k | 0% |
Where does the money go?
Latest accounts (2025) · £2.7m spent
- Charitable activities88% · £2.4m
- Fundraising12% · £319k
- Governance0% · £12k
What trust indicators does Huntingtons Disease Association have?
Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported.
-
Accounts filed on time
up to date · last filing
-
Trustee board size (3–12)
10 trustees on the Charity Commission register
-
Workforce on register
51 employees · 189 volunteers (4:1 volunteer-to-staff)
Fundraising Regulator
Status not yet checked
Separate from our financial scores — shows whether the charity follows the Code of Fundraising Practice.
Check Fundraising Regulator →Official register
Reg 296453
Full trustee list, accounts, and regulatory history on the Charity Commission.
View on Charity Commission →Trustees & officers
- NICHOLAS HEATH
- Prof Hugh Rickards Chair · since 2015
- Catherine Lyon since 2017
- Sian Baker since 2017
- Stephen Duckett since 2018
- Dr Nayana Swales since 2020
- David Rhys Thomas since 2022
- Sharon Bakewell since 2024
- Dr Akshay Nair since 2025
- Dalvir Padda since 2025
How we score charities +
The Clarity Score is a 100-point rating from UK regulator filings (Charity Commission for England and Wales, OSCR and CCNI). Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10) — each scored on a continuous scale, not pass/fail cutoffs. A statutory inquiry sets the score to 0 automatically.
Accountability & Transparency
Scored from filings
40 points — filing history (15), trustee oversight (15, scaling up to a board of three or more), declared policies (10).
Financial Health
Scored from filings
30 points — reserves (15, full marks 3–24 months, tapering on both sides), income stability (10), liabilities to assets (5, scaling down as debt rises).
Financial Efficiency
Scored from filings
20 points — program expense ratio and fundraising cost, each on a graduated scale (not a single cutoff). Kept at 20% of the total: financial-ratio scoring alone is not a reliable effectiveness signal (see "why not just an overhead ratio?" below).
Community Support
Scored from filings
10 points — volunteer-to-staff ratio from Charity Commission workforce data, scaling continuously up to a 2:1 ratio.
Overall score
Sum of all pillar points. Display stars use the same bands as the labels: 90–100 → 5★ Exceptional; 75–89 → 4★ Good; 60–74 → 3★ Needs improvement; 1–59 → 2★ Poor; 0 → not rated.
How have Huntingtons Disease Association's finances changed over five years?
- Income
- Spending
- Cause spend
Values in £ thousands · Cause spend plotted only when the filing discloses a split · Source: Charity Commission accounts
What are the key facts about Huntingtons Disease Association?
- Overall score
- 97/100 (5★)
- Income
- £2.5m
- Cause spend
- 87% of expenditure
- Reg number
- 296453
- Scope
- UK-wide
- Reserves
- 8 months
- Trustees
- 10
- Accounts year
- 2025
- Filing
- up to date
How does HUNTINGTONS DISEASE ASSOCIATION compare, and where else can you look?
Where HUNTINGTONS DISEASE ASSOCIATION sits
The causes this charity is classified under, and other charities working nearby.
Similar poverty relief charities
Top-rated peers by CharityCompare score
- AMOS TRUST 100/100 · £2.6m
- SUFRA - NW LONDON 100/100 · £1.7m
- WILDERNESS FOUNDATION UK 100/100 · £1.6m
- BIRMINGHAM CITY MISSION 100/100 · £1.4m
How can you share Huntingtons Disease Association's rating?
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Frequently asked questions
Common questions about Huntingtons Disease Association's rating, finances, and Charity Commission status.
Is Huntingtons Disease Association a good charity? +
Huntingtons Disease Association scores 97 out of 100 (5 stars — Exceptional) on CharityCompare's Clarity Score, our independent read of its UK regulator filings. Around 87% of its spending goes to charitable activities and its accounts are up to date. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate.
Is Huntingtons Disease Association a legitimate charity? +
Yes — Huntingtons Disease Association is a legitimate registered charity (charity number 296453). Verify it on the official register: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/296453. Registration proves status; Clarity Score then summarises filing transparency on paper, not programme impact.
What is Huntingtons Disease Association's charity number? +
Huntingtons Disease Association's charity number is 296453. Check that number on the official register (Charity Commission, OSCR or CCNI) or this CharityCompare profile before you donate — scammers sometimes reuse real numbers on fake appeals.
What is Huntingtons Disease Association's charity rating? +
Huntingtons Disease Association scores 97 out of 100 on CharityCompare (5 stars — Exceptional). The Clarity Score V1 sums four pillars from UK regulator filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10). Stars use the same bands as those labels — 90+ is 5★ Exceptional. It is not an impact ranking.
Does Huntingtons Disease Association have reviews and complaints? +
CharityCompare does not host public user reviews for Huntingtons Disease Association. Instead you get a filing-based Clarity Score, cause spend, reserves and red flags such as late accounts. For formal complaints about a charity, contact the Charity Commission, OSCR, CCNI or the Fundraising Regulator as appropriate.
How much of my donation reaches Huntingtons Disease Association? +
According to its 2025 regulator filing, 87% of Huntingtons Disease Association's total spending went to charitable activities (3-yr avg across disclosed years). That is the closest official figure to "how much of your donation reaches the cause" — it is an average across all spending in the filing, not a pound-by-pound breakdown of an individual gift.
What are Huntingtons Disease Association's overheads? +
According to its 2025 regulator filing, fundraising costs were about 13% of total expenditure and combined overheads (fundraising plus governance) were about 13% of total expenditure at Huntingtons Disease Association. The filings CharityCompare uses do not publish CEO or senior-staff pay, so we cannot say what Huntingtons Disease Association's chief executive is paid — where disclosure rules apply, senior pay appears in the trustees' annual report on the Charity Commission register.
How much income does Huntingtons Disease Association receive? +
Huntingtons Disease Association reported £2.5m total income in its 2025 accounts, based on UK regulator filings. Five-year trend: growing.
Are Huntingtons Disease Association's accounts up to date? +
Filing status: up to date (last filing 2026-06-24). CharityCompare flags late or missing accounts separately from the financial score.
Where is Huntingtons Disease Association based? +
Huntingtons Disease Association is listed at Liverpool · UK-wide · L3 5TF and operates UK-wide, focused on poverty relief.
How does CharityCompare score Huntingtons Disease Association? +
We calculate a Clarity Score of 0–100 from four pillars in Huntingtons Disease Association's regulator filings: Accountability & Transparency (40 points — filing history, trustees, policies), Financial Health (30 — reserves, income trend, debt), Financial Efficiency (20 — cause spend and fundraising cost, on a graduated scale) and Community Support (10 — volunteer-to-staff ratio). An open statutory inquiry scores 0. The score measures reporting on paper, not programme impact. CharityCompare is free for donors, takes no commission on donations, and scores cannot be bought.
How often is this page updated? +
This profile was last updated on 17 July 2026 from the latest UK regulator data available to CharityCompare, and Huntingtons Disease Association's most recent accounts cover 2025. Scores and figures refresh whenever we re-ingest the register, so the page reflects our latest data pull rather than a one-off review.