Disability · Reg 1128289
DRAVET SYNDROME UK
Charity rating & review
95/100 Clarity Score · 4 stars · Charity Commission filings · How we score
Clarity score
Exceptional
Is DRAVET SYNDROME UK a good charity?
DRAVET SYNDROME UK scores 95/100 (Exceptional) on our Clarity Score, with 81% of spending going to charitable activities and accounts up to date. This reflects financial transparency and stewardship from Charity Commission filings — not the real-world impact of its programmes. See the full breakdown.
Donate
Give to DRAVET SYNDROME UK
You leave CharityCompare to complete a donation on the official DRAVET SYNDROME UK form. We do not process payments or take commission. Opens their official online donation form.
Mission
DRAVET SYNDROME UK is a registered charity (no. 1128289) working in disability across the United Kingdom. Its latest Charity Commission filing directs 81% of spending to charitable activities, holding roughly 7 months of reserves, and files its annual accounts on time. Reported income has been declining over recent years. CharityCompare's Clarity Score rates the organisation only from public Charity Commission accounts — accountability, financial health, efficiency and community support — not the quality or impact of its programmes.
In short: DRAVET SYNDROME UK scores 95 out of 100 (4 stars). 81% average program spend (3-year average). Filings are up to date with no major concerns.
Overview
DRAVET SYNDROME UK has a Clarity Score of 95 out of 100 on CharityCompare (4 stars, Exceptional). Charity Commission registration number 1128289. Status: Registered. Primary cause area: Disability. Latest accounts year 2021: total income £345k, with 81% of expenditure on charitable activities. Accounts filing: up to date. Reserves: approximately 7 months of operating costs. No major red flags from our filing review. Scores are independent and based on official filings — not a donation recommendation.
Data from Charity Commission register, last updated .
Overall score
95/100
4★ · Great
Cause spend
81%
3-yr avg · charitable activities
Accountability
100/100
Finance beacon
Income
£345k
Latest year 2021
Reserves
7 mo
Months of running costs
Accounts filing
On time
Charity Commission
£22.2 raised per £1 fundraising (3-yr avg) · 6% overhead · Website on register · Confidence: high
How DRAVET SYNDROME UK compares
Clarity Score benchmarked against similar UK charities — higher is better.
Ranks higher than 90% of 2,492 charities in its income band.
Ranks higher than 90% of 742 charities in this cause.
Data & confidence
- Source
- Charity Commission (E&W)
- Accounts year
- 2021
- Filing date
- 2026-06-24 00:00:00.0000000
- Profile reviewed
- 2026-06-25
High confidence — complete filing data
Scores reflect the latest annual accounts on the register. Impact, leadership, and culture beacons require information beyond public filings.
Contains public sector information licensed under the Open Government Licence v3.0. Source: Charity Commission for England and Wales . Open Government Licence v3.0 .
Beacon report
Detailed accountability and finance metrics from Charity Commission filings — structured for transparency in our four-beacon report.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
100/100
| Metric | Score | Value |
|---|---|---|
| Filing history (5 years) 100% on-time over five years = 15 pts · one late filing = 5 pts · two or more = 0 pts. | 100% | 15/15 pts |
| Trustee oversight Three or more trustees on the register = 15 pts · one or two = 0 pts (governance red flag). | 100% | 5 trustees · 15/15 pts |
| Declared policies Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return. | 100% | 10/10 pts |
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
83/100
| Metric | Score | Value |
|---|---|---|
| Reserves (months of cash) 3–24 months = 15 pts · 1–3 months = 7 pts · under 1 month or over 3 years (hoarding) = 0 pts. | 100% | 7 months · 15/15 pts |
| Income stability / growth Positive or stable three-year revenue trend = 10 pts · sustained decline = 0 pts. | 100% | 10/10 pts · 3-year average |
| Liabilities to assets Low debt (< 30% liabilities to assets) = 5 pts · high debt = 0 pts. | 0% | 41% · 0/5 pts |
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
100/100
| Metric | Score | Value |
|---|---|---|
| Program expense ratio ≥ 75% on charitable activities = 10 pts · 60–75% = 5 pts · below 60% = 0 pts. | 100% | 81% · 10/10 pts (3-year average) |
| Fundraising efficiency Spends ≤ £0.20 to raise £1 = 10 pts · £0.21–£0.35 = 5 pts · above £0.35 = 0 pts (fundraising cost ÷ income). | 100% | 4p per £1 income · 10/10 pts (3-year average) |
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
100/100
| Metric | Score | Value |
|---|---|---|
| Volunteer-to-staff ratio More volunteers than paid staff = 10 pts · equal mix = 5 pts · no volunteers = 0 pts. | 100% | 14 volunteers / 7 staff · 10/10 pts |
Clarity Score
95/100 total · Exceptional · 4 of 4 stars
Four pillars (40 + 30 + 20 + 10 points) from Charity Commission filings — see methodology for full weightings.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
100/100
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
83/100
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
100/100
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
100/100
Revenue & expenses
Latest filed year 2021 · Source: Charity Commission annual accounts
| Category | Amount | % of spend |
|---|---|---|
| Total income | £345k | — |
| Total expenditure | £306k | — |
Where the money goes
Latest accounts (2021) · £306k spent
- Other spending100% · £306k
Trust indicators
Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported.
-
Accounts filed on time
up to date · last filing 2026-06-24 00:00:00.0000000
-
Trustee board size (3–12)
5 trustees on the Charity Commission register
-
Workforce on register
7 employees · 14 volunteers (2:1 volunteer-to-staff)
Fundraising Regulator
Status not yet checked
Separate from our financial scores — shows whether the charity follows the Code of Fundraising Practice.
Check Fundraising Regulator →Official register
Reg 1128289
Full trustee list, accounts, and regulatory history on the Charity Commission.
View on Charity Commission →Trustees & officers
- Galia Wilson-John Chair · since 2015
- John David Rees Lloyd since 2019
- Neil Williamson since 2020
- Alex Williams since 2023
- Stephanie Smith since 2024
How we score charities +
The Clarity Score is a 100-point rating from UK Charity Commission data. Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10). A statutory inquiry sets the score to 0 automatically.
Accountability & Transparency
Scored from filings
40 points — filing history (15), trustee oversight (15), declared policies (10).
Financial Health
Scored from filings
30 points — reserves (15), income stability (10), liabilities to assets (5).
Financial Efficiency
Scored from filings
20 points — program expense ratio (10), fundraising efficiency (10). Kept at 20% to avoid punishing legitimate infrastructure costs.
Community Support
Scored from filings
10 points — volunteer-to-staff ratio from Charity Commission workforce data.
Overall score
Sum of all pillar points. Translated to stars: 90–100 Exceptional (4★), 75–89 Good (3★), 60–74 Needs improvement (2★), below 60 Poor (1★).
Five-year trends
- Income
- Spending
- Cause spend
Values in £ thousands · Source: Charity Commission accounts
Key facts
- Overall score
- 95/100 (4★)
- Income
- £345k
- Cause spend
- 81% of expenditure
- Reg number
- 1128289
- Scope
- UK-wide
- Reserves
- 7 months
- Trustees
- 5
- Accounts year
- 2021
- Filing
- up to date
Compare & explore
Similar disability charities
Top-rated peers by CharityCompare score
- Felix Charity 100/100 · £72m
- ELIM FOURSQUARE GOSPEL ALLIANCE 100/100 · £66m
- PARKINSON'S DISEASE SOCIETY OF THE UNITED KINGDOM 100/100 · £36m
- MOVEMBER EUROPE 100/100 · £27m
Share & export
Opens a printer-friendly view of this profile for DRAVET SYNDROME UK.
For this charity
Add your rating to your site
Free to use — a lightweight HTML badge or an embeddable score widget, each linking back to this independent profile and our methodology.
Frequently asked questions
Common questions about DRAVET SYNDROME UK's rating, finances, and Charity Commission status.
What is DRAVET SYNDROME UK's charity rating? +
DRAVET SYNDROME UK scores 95 out of 100 on CharityCompare (4 stars — Exceptional). The Clarity Score V1 sums four pillars from Charity Commission filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10).
Is DRAVET SYNDROME UK a good charity to donate to? +
DRAVET SYNDROME UK scores 95 out of 100 (4 stars — Exceptional) on CharityCompare's Clarity Score, our independent read of its Charity Commission filings. Around 81% of its spending goes to charitable activities and its accounts are up to date. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate.
Is DRAVET SYNDROME UK a legitimate UK charity? +
Yes — DRAVET SYNDROME UK is registered with the Charity Commission for England and Wales under registration number 1128289. You can verify the entry on the official register.
What is DRAVET SYNDROME UK's Charity Commission registration number? +
DRAVET SYNDROME UK's registration number is 1128289. Official register: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1128289
How much income does DRAVET SYNDROME UK receive? +
DRAVET SYNDROME UK reported £345k total income in its 2021 accounts, based on Charity Commission filings. Five-year trend: declining.
What percentage of DRAVET SYNDROME UK's spending goes to charitable activities? +
Approximately 81% of total expenditure went to charitable activities in the latest filed year. Fundraising was 3% and combined overhead (fundraising plus governance) was 6%.
Are DRAVET SYNDROME UK's accounts up to date? +
Filing status: up to date (last filing 2026-06-24 00:00:00.0000000). CharityCompare flags late or missing accounts separately from the financial score.
Where is DRAVET SYNDROME UK based? +
DRAVET SYNDROME UK is listed at Sheffield · UK-wide · S43 9EB and operates UK-wide, focused on disability.
How does CharityCompare score DRAVET SYNDROME UK? +
We analyse Charity Commission annual accounts using three-year averages for program expense, fundraising efficiency, and overhead; working capital from reserves vs average expenditure; liabilities-to-assets from the latest balance sheet when available. Impact, leadership, and culture beacons are not yet assessed from public data alone. See our methodology for weights and thresholds.
Does CharityCompare recommend donating to DRAVET SYNDROME UK? +
No. CharityCompare provides independent scores and facts from official filings. We do not tell you where to donate or earn commission from charities.
How can I compare DRAVET SYNDROME UK with other charities? +
Use our free compare tool to put DRAVET SYNDROME UK side-by-side with other UK charities on scores, finances, and filing status.