Xlh UK
Xlh UK is a registered charity in England & Wales working in the advancement of health or saving of lives, based in Kington.
Quick answer
Key facts
- Registered charity number
- 1196811
- Status
- Registered (active)
- Charity type
- CIO
- Location
- Kington
- Latest income (year ending 2025-01-31)
- £13,252
- Website
- xlhuk.org
What the charity does
XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. Xlh UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
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Frequently asked questions
- Is Xlh UK a legitimate charity?
- Yes. Xlh UK is a registered charity (number 1196811) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does Xlh UK do?
- XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
- How can I donate to Xlh UK?
- Xlh UK's website is https://xlhuk.org/ — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.