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Registered charity · No. 1152445CIO

Wolfram Syndrome UK

Independent profile · Charity Commission for England and Wales data

Wolfram Syndrome UK is a registered charity in England & Wales. Its register classifications include general charitable purposes, education/training, the advancement of health or saving of lives.

Register extract · Not yet rated

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At a glance · official register

What are the key facts about Wolfram Syndrome UK?

Reported income · year ending 2025-02-28
£121,228
Reported spending · year ending 2025-02-28
£139,723
Registered charity number
1152445
Status in source extract
Registered
Charity type
CIO
Register contact address detail (not service area)
Worthing
Registered for Gift Aid (HMRC)
Yes

Quick answer

Wolfram Syndrome UK (number 1152445) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.

What does Wolfram Syndrome UK do?

WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.

Activities reported on the official register · extract 2026-10-04.

From the annual return

Pay, income, Gift Aid and registration details for Wolfram Syndrome UK

Answers Wolfram Syndrome UK gave in its annual return to the Charity Commission for the year ending 28 February 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.

How much are Wolfram Syndrome UK's highest-paid staff paid?

Wolfram Syndrome UK's annual return for the year ending 28 February 2025 reports no employees paid more than £60,000.

The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.

Can I claim Gift Aid, and are the trustees paid?

The register records Wolfram Syndrome UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid

Wolfram Syndrome UK's annual return for the year ending 28 February 2025 reports that one or more trustees received payments or other benefits. Charity law allows this only in limited circumstances; the trustees' annual report should explain it.

Registration details

Registered as a charity
Also known as
Wsuk
Where it says it operates
Throughout England and Wales · Ireland · Scotland

Who it supports and how it works

Reported beneficiaries: Children/young People; People With Disabilities.

Reported activities: Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research; Other Charitable Activities.

Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.

What causes is Wolfram Syndrome UK registered for?

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives

Why is there no Clarity Score for Wolfram Syndrome UK yet?

Our dataset does not yet contain the detailed filing history needed to score Wolfram Syndrome UK. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. How scoring works

What should you check before donating to Wolfram Syndrome UK?

  • Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
  • Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
  • Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.

How to read charity accounts · Explore rated charities

Is this your charity?

Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.

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Frequently asked questions

Is Wolfram Syndrome UK a legitimate charity?
The register data used for this profile lists Wolfram Syndrome UK as a registered charity (number 1152445) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Wolfram Syndrome UK's charity number?
Wolfram Syndrome UK's charity number is 1152445. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1152445?
Search 1152445 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Wolfram Syndrome UK do?
WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.
Does Wolfram Syndrome UK have reviews and complaints?
CharityCompare does not host public user reviews for Wolfram Syndrome UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Wolfram Syndrome UK?
Wolfram Syndrome UK's website listed in our register data is http://www.wolframsyndrome.co.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Wolfram Syndrome UK's chief executive paid?
The Charity Commission register does not name individual salaries. Wolfram Syndrome UK's annual return for the year ending 28 February 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Wolfram Syndrome UK?
The register records Wolfram Syndrome UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Wolfram Syndrome UK's trustees paid?
Wolfram Syndrome UK's annual return for the year ending 28 February 2025 reports that one or more trustees received payments or other benefits. Charity law allows this only in limited circumstances; the trustees' annual report should explain it.
When was Wolfram Syndrome UK registered as a charity?
Wolfram Syndrome UK was entered on the register on 17 June 2013.

Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the Open Government Licence v3.0. Always verify current details on the official register entry.