Is Wolfram Syndrome UK a legitimate charity?

Yes. Wolfram Syndrome UK is a registered charity (number 1152445) regulated by the Charity Commission for England and Wales. You can verify it on the official register.

How can I donate to Wolfram Syndrome UK?

Wolfram Syndrome UK's website is http://www.wolframsyndrome.co.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Registered charity · No. 1152445CIOWorthing

Wolfram Syndrome UK

Wolfram Syndrome UK is a registered charity in England & Wales working in general charitable purposes, education/training, the advancement of health or saving of lives, based in Worthing.

Quick answer

Wolfram Syndrome UK is a registered charity (number 1152445) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: general charitable purposes; education/training; the advancement of health or saving of lives. Its latest reported income was £121,228 (year ending 2025-02-28). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

Key facts

Registered charity number: 1152445
Status: Registered (active)
Charity type: CIO
Location: Worthing
Latest income (year ending 2025-02-28): £121,228
Website: www.wolframsyndrome.co.uk

What the charity does

WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.

Registered causes

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives

Why there's no Clarity Score yet

The Clarity Score is computed from full financial filing history. Wolfram Syndrome UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works

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Frequently asked questions

Is Wolfram Syndrome UK a legitimate charity?: Yes. Wolfram Syndrome UK is a registered charity (number 1152445) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
What does Wolfram Syndrome UK do?: WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.
How can I donate to Wolfram Syndrome UK?: Wolfram Syndrome UK's website is http://www.wolframsyndrome.co.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.