Vhl UK/Ireland (number 1160381) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Vhl UK/Ireland do?
The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Vhl UK/Ireland
Answers Vhl UK/Ireland gave in its annual return to the Charity Commission for the year ending 5 April 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
Can I claim Gift Aid, and are the trustees paid?
The register records Vhl UK/Ireland as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Vhl UK/Ireland's annual return for the year ending 5 April 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Where it says it operates
Ireland · Scotland · Northern Ireland · Throughout England and Wales
Who it supports and how it works
Reported beneficiaries: People With Disabilities.
Reported activities: Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Vhl UK/Ireland registered for?
The Advancement Of Health Or Saving Of Lives
Why is there no Clarity Score for Vhl UK/Ireland yet?
Our dataset does not yet contain the detailed filing history needed to score Vhl UK/Ireland.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Vhl UK/Ireland?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
The register data used for this profile lists Vhl UK/Ireland as a registered charity (number 1160381) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Vhl UK/Ireland's charity number?
Vhl UK/Ireland's charity number is 1160381. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1160381?
Search 1160381 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Vhl UK/Ireland do?
The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.
Does Vhl UK/Ireland have reviews and complaints?
CharityCompare does not host public user reviews for Vhl UK/Ireland. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Vhl UK/Ireland?
Vhl UK/Ireland's website listed in our register data is http://vhl-uk-ireland.org/. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
Can I claim Gift Aid on a donation to Vhl UK/Ireland?
The register records Vhl UK/Ireland as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Vhl UK/Ireland's trustees paid?
Vhl UK/Ireland's annual return for the year ending 5 April 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Vhl UK/Ireland registered as a charity?
Vhl UK/Ireland was entered on the register on 9 February 2015.