Independent profile · Charity Commission for England and Wales data
UK Infantile Spasms Trust is a registered charity in England & Wales. Its register classifications include general charitable purposes, the advancement of health or saving of lives, disability.
UK Infantile Spasms Trust (number 1172167) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does UK Infantile Spasms Trust do?
Raising money to help families who have children who suffer from spasms with support and care.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for UK Infantile Spasms Trust
Answers UK Infantile Spasms Trust gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
Can I claim Gift Aid, and are the trustees paid?
The register records UK Infantile Spasms Trust as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
UK Infantile Spasms Trust's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Also known as
Ukist - UK Infantile Spasms Trust
Where it says it operates
Throughout England and Wales
Who it supports and how it works
Reported beneficiaries: Children/young People.
Reported activities: Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is UK Infantile Spasms Trust registered for?
General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability
Why is there no Clarity Score for UK Infantile Spasms Trust yet?
Our dataset does not yet contain the detailed filing history needed to score UK Infantile Spasms Trust.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to UK Infantile Spasms Trust?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
Is UK Infantile Spasms Trust a legitimate charity?
The register data used for this profile lists UK Infantile Spasms Trust as a registered charity (number 1172167) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is UK Infantile Spasms Trust's charity number?
UK Infantile Spasms Trust's charity number is 1172167. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1172167?
Search 1172167 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does UK Infantile Spasms Trust do?
Raising money to help families who have children who suffer from spasms with support and care.
Does UK Infantile Spasms Trust have reviews and complaints?
CharityCompare does not host public user reviews for UK Infantile Spasms Trust. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to UK Infantile Spasms Trust?
UK Infantile Spasms Trust's website listed in our register data is https://ukinfantilespasmstrust.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
Can I claim Gift Aid on a donation to UK Infantile Spasms Trust?
The register records UK Infantile Spasms Trust as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are UK Infantile Spasms Trust's trustees paid?
UK Infantile Spasms Trust's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
When was UK Infantile Spasms Trust registered as a charity?
UK Infantile Spasms Trust was entered on the register on 21 March 2017.