The Osteopetrosis Support Trust
The Osteopetrosis Support Trust is a registered charity in England & Wales working in general charitable purposes, the advancement of health or saving of lives, disability, based in Notch Road.
Quick answer
Key facts
- Registered charity number
- 1013052
- Status
- Registered (active)
- Charity type
- Trust
- Location
- Notch Road
- Latest income (year ending 2025-04-05)
- £75
What the charity does
OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. The Osteopetrosis Support Trust is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
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Frequently asked questions
- Is The Osteopetrosis Support Trust a legitimate charity?
- Yes. The Osteopetrosis Support Trust is a registered charity (number 1013052) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does The Osteopetrosis Support Trust do?
- OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
- How can I donate to The Osteopetrosis Support Trust?
- The Osteopetrosis Support Trust's website is http://Www.osteopetrosis-support-trust.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.