Registered charity · No. 1157027Charitable company
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The Ehlers-Danlos Support UK
Independent profile · Charity Commission for England and Wales data
The Ehlers-Danlos Support UK is a registered charity in England & Wales. Its register classifications include general charitable purposes, education/training, the advancement of health or saving of lives.
The Ehlers-Danlos Support UK (number 1157027) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does The Ehlers-Danlos Support UK do?
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for The Ehlers-Danlos Support UK
Answers The Ehlers-Danlos Support UK gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are The Ehlers-Danlos Support UK's highest-paid staff paid?
The Ehlers-Danlos Support UK's annual return for the year ending 31 March 2025 reports 1 employee paid more than £60,000. The highest reported pay band is £60,001–£70,000 (1 employee).
Employees paid over £60,000, by salary band
£60,001–£70,000
1
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Can I claim Gift Aid, and are the trustees paid?
The register records The Ehlers-Danlos Support UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
The Ehlers-Danlos Support UK's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
Throughout England and Wales · Scotland · Northern Ireland
Who it supports and how it works
Reported beneficiaries: People With Disabilities.
Reported activities: Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is The Ehlers-Danlos Support UK registered for?
General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives
Why is there no Clarity Score for The Ehlers-Danlos Support UK yet?
Our dataset does not yet contain the detailed filing history needed to score The Ehlers-Danlos Support UK.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to The Ehlers-Danlos Support UK?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
Is The Ehlers-Danlos Support UK a legitimate charity?
The register data used for this profile lists The Ehlers-Danlos Support UK as a registered charity (number 1157027) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is The Ehlers-Danlos Support UK's charity number?
The Ehlers-Danlos Support UK's charity number is 1157027. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1157027?
Search 1157027 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does The Ehlers-Danlos Support UK do?
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
Does The Ehlers-Danlos Support UK have reviews and complaints?
CharityCompare does not host public user reviews for The Ehlers-Danlos Support UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to The Ehlers-Danlos Support UK?
The Ehlers-Danlos Support UK's website listed in our register data is http://www.ehlers-danlos.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is The Ehlers-Danlos Support UK's chief executive paid?
The Charity Commission register does not name individual salaries. The Ehlers-Danlos Support UK's annual return for the year ending 31 March 2025 reports 1 employee paid more than £60,000. The highest reported pay band is £60,001–£70,000 (1 employee). Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to The Ehlers-Danlos Support UK?
The register records The Ehlers-Danlos Support UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are The Ehlers-Danlos Support UK's trustees paid?
The Ehlers-Danlos Support UK's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
When was The Ehlers-Danlos Support UK registered as a charity?
The Ehlers-Danlos Support UK was entered on the register on 13 May 2014. It is also a company registered at Companies House (company number 08924646).