Is The Ehlers-Danlos Support UK a legitimate charity?

Yes. The Ehlers-Danlos Support UK is a registered charity (number 1157027) regulated by the Charity Commission for England and Wales. You can verify it on the official register.

How can I donate to The Ehlers-Danlos Support UK?

The Ehlers-Danlos Support UK's website is http://www.ehlers-danlos.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Registered charity · No. 1157027Charitable company66 Lavender Hill

The Ehlers-Danlos Support UK

The Ehlers-Danlos Support UK is a registered charity in England & Wales working in general charitable purposes, education/training, the advancement of health or saving of lives, based in 66 Lavender Hill.

Quick answer

The Ehlers-Danlos Support UK is a registered charity (number 1157027) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: general charitable purposes; education/training; the advancement of health or saving of lives. Its latest reported income was £434,770 (year ending 2025-03-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

Key facts

Registered charity number: 1157027
Status: Registered (active)
Charity type: Charitable company
Location: 66 Lavender Hill
Latest income (year ending 2025-03-31): £434,770
Website: www.ehlers-danlos.uk

What the charity does

Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'

Registered causes

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives

Why there's no Clarity Score yet

The Clarity Score is computed from full financial filing history. The Ehlers-Danlos Support UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works

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Frequently asked questions

Is The Ehlers-Danlos Support UK a legitimate charity?: Yes. The Ehlers-Danlos Support UK is a registered charity (number 1157027) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
What does The Ehlers-Danlos Support UK do?: Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
How can I donate to The Ehlers-Danlos Support UK?: The Ehlers-Danlos Support UK's website is http://www.ehlers-danlos.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.