The 1p36 Family Trust
The 1p36 Family Trust is a registered charity in England & Wales working in the advancement of health or saving of lives, based in New Ash Green.
Quick answer
Key facts
- Registered charity number
- 1181988
- Status
- Registered (active)
- Charity type
- CIO
- Location
- New Ash Green
- Latest income (year ending 2025-03-31)
- £20,777
- Website
- www.1p36.co.uk
What the charity does
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. The 1p36 Family Trust is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
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Frequently asked questions
- Is The 1p36 Family Trust a legitimate charity?
- Yes. The 1p36 Family Trust is a registered charity (number 1181988) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does The 1p36 Family Trust do?
- Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
- How can I donate to The 1p36 Family Trust?
- The 1p36 Family Trust's website is http://www.1p36.co.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.