Independent profile · Charity Commission for England and Wales data
Sudep Action is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives, other charitable purposes.
Sudep Action (number 1164250) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Sudep Action do?
SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Sudep Action
Answers Sudep Action gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are Sudep Action's highest-paid staff paid?
Sudep Action's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Where does Sudep Action's money come from?
Sudep Action reported £518k total income for the year ending 31 March 2025. The largest sources were donations and legacies £504k (97%), investments £7,676 (1%), charitable activities £5,578 (1%). Legacies (gifts in wills) contributed £500.
Donations and legacies£504k · 97%
Investments£7,676 · 1%
Charitable activities (fees and contracts)£5,578 · 1%
Can I claim Gift Aid, and are the trustees paid?
The register records Sudep Action as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Sudep Action's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Also known as
Epilepsy Bereaved
Where it says it operates
Throughout England and Wales · Scotland
Who it supports and how it works
Reported beneficiaries: Other Defined Groups.
Reported activities: Makes Grants To Organisations; Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
Linked funds and trusts
The register records these funds under parent charity number 1164250. They are not counted as separate charity registrations in this directory. Check each linked record for its purposes.
The Advancement Of Health Or Saving Of LivesOther Charitable Purposes
Why is there no Clarity Score for Sudep Action yet?
Our dataset does not yet contain the detailed filing history needed to score Sudep Action.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Sudep Action?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
The register data used for this profile lists Sudep Action as a registered charity (number 1164250) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Sudep Action's charity number?
Sudep Action's charity number is 1164250. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1164250?
Search 1164250 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Sudep Action do?
SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.
Does Sudep Action have reviews and complaints?
CharityCompare does not host public user reviews for Sudep Action. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Sudep Action?
Sudep Action's website listed in our register data is http://www.sudep.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Sudep Action's chief executive paid?
The Charity Commission register does not name individual salaries. Sudep Action's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Where does Sudep Action's money come from?
Sudep Action reported £518k total income for the year ending 31 March 2025. The largest sources were donations and legacies £504k (97%), investments £7,676 (1%), charitable activities £5,578 (1%). Legacies (gifts in wills) contributed £500.
Can I claim Gift Aid on a donation to Sudep Action?
The register records Sudep Action as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Sudep Action's trustees paid?
Sudep Action's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Sudep Action registered as a charity?
Sudep Action was entered on the register on 4 November 2015.