Is Sudep Action a legitimate charity?

Yes. Sudep Action is a registered charity (number 1164250) regulated by the Charity Commission for England and Wales. You can verify it on the official register.

How can I donate to Sudep Action?

Sudep Action's website is http://www.sudep.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Registered charity · No. 1164250CIO18 Newbury Street

Sudep Action

Sudep Action is a registered charity in England & Wales working in the advancement of health or saving of lives, other charitable purposes, based in 18 Newbury Street.

Quick answer

Sudep Action is a registered charity (number 1164250) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives; other charitable purposes. Its latest reported income was £517,612 (year ending 2025-03-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

Key facts

Registered charity number: 1164250
Status: Registered (active)
Charity type: CIO
Location: 18 Newbury Street
Latest income (year ending 2025-03-31): £517,612
Website: www.sudep.org

What the charity does

SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.

Registered causes

The Advancement Of Health Or Saving Of LivesOther Charitable Purposes

Why there's no Clarity Score yet

The Clarity Score is computed from full financial filing history. Sudep Action is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works

Is this your charity?

Claim this profile free to add your own description, correct details, or respond publicly. Optional partner plans add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.

Claim this profile — free Visit charity website

Frequently asked questions

Is Sudep Action a legitimate charity?: Yes. Sudep Action is a registered charity (number 1164250) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
What does Sudep Action do?: SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.
How can I donate to Sudep Action?: Sudep Action's website is http://www.sudep.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-17, used under the Open Government Licence v3.0. Always verify current details on the official register entry.