Is Stickler Syndrome UK a legitimate charity?

Yes. Stickler Syndrome UK is a registered charity (number 1060421) regulated by the Charity Commission for England and Wales. You can verify it on the official register.

How can I donate to Stickler Syndrome UK?

Stickler Syndrome UK's website is http://www.stickler.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Registered charity · No. 1060421Maidstone

Stickler Syndrome UK

Stickler Syndrome UK is a registered charity in England & Wales working in general charitable purposes, education/training, the advancement of health or saving of lives, based in Maidstone.

Quick answer

Stickler Syndrome UK is a registered charity (number 1060421) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: general charitable purposes; education/training; the advancement of health or saving of lives. Its latest reported income was £42,754 (year ending 2025-09-30). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

Key facts

Registered charity number: 1060421
Status: Registered (active)
Charity type: Other
Location: Maidstone
Latest income (year ending 2025-09-30): £42,754
Website: www.stickler.org.uk

What the charity does

Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.

Registered causes

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives

Why there's no Clarity Score yet

The Clarity Score is computed from full financial filing history. Stickler Syndrome UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works

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Frequently asked questions

Is Stickler Syndrome UK a legitimate charity?: Yes. Stickler Syndrome UK is a registered charity (number 1060421) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
What does Stickler Syndrome UK do?: Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.
How can I donate to Stickler Syndrome UK?: Stickler Syndrome UK's website is http://www.stickler.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.