Shwachman Diamond Syndrome UK
Shwachman Diamond Syndrome UK is a registered charity in England & Wales working in general charitable purposes, education/training, the advancement of health or saving of lives, based in Washingborough.
Quick answer
Key facts
- Registered charity number
- 1164269
- Status
- Registered (active)
- Charity type
- CIO
- Location
- Washingborough
- Latest income (year ending 2024-10-31)
- £54,760
- Website
- www.sdsuk.org
What the charity does
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. Shwachman Diamond Syndrome UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
Claim this profile free to add your own description, correct details, or respond publicly. Optional partner plans add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.
Frequently asked questions
- Is Shwachman Diamond Syndrome UK a legitimate charity?
- Yes. Shwachman Diamond Syndrome UK is a registered charity (number 1164269) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does Shwachman Diamond Syndrome UK do?
- To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
- How can I donate to Shwachman Diamond Syndrome UK?
- Shwachman Diamond Syndrome UK's website is http://www.sdsuk.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.