Skip to content
CharityCompare
Registered charity · No. SC045645SCIO (Scottish Charitable Incorporated Organisation)West Dunbartonshire

ROHHAD Association

ROHHAD Association is a registered charity in Scotland working in the advancement of education, the advancement of health, the saving of lives, based in West Dunbartonshire.

Quick answer

ROHHAD Association is a registered charity (number SC045645) on the Office of the Scottish Charity Regulator (OSCR) register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of education; the advancement of health; the saving of lives. Its latest reported income was £33,227 (year ending 2025-05-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

Key facts

Registered charity number
SC045645
Status
Registered (active)
Charity type
SCIO (Scottish Charitable Incorporated Organisation)
Location
West Dunbartonshire
Latest income (year ending 2025-05-31)
£33,227

What the charity does

The Rohhad Association supports people affected by ROHHAD Syndrome through improved quality of life initiatives, raising awareness, and advancing research. We work closely with the ROHHAD International Consortium—founded by our co-founder Elisabeth Hunter during the COVID pandemic—and collaborate with charities worldwide, including ROHHAD Fight Inc, ROHHAD Association Argentina, Belgium, and Nordic. Each year, our core activities include awareness campaigns, fundraising, advocacy, forming strategic partnerships, hosting online support groups, providing one-to-one peer and family support, and…

Registered causes

the advancement of educationthe advancement of healththe saving of lives

Why there's no Clarity Score yet

The Clarity Score is computed from full financial filing history. ROHHAD Association is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works

Is this your charity?

Claim this profile free to add your own description, correct details, or respond publicly. Optional partner plans add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.

Claim this profile — free Visit charity website

Frequently asked questions

Is ROHHAD Association a legitimate charity?
Yes. ROHHAD Association is a registered charity (number SC045645) regulated by the Office of the Scottish Charity Regulator (OSCR). You can verify it on the official register.
What does ROHHAD Association do?
The Rohhad Association supports people affected by ROHHAD Syndrome through improved quality of life initiatives, raising awareness, and advancing research. We work closely with the ROHHAD International Consortium—founded by our co-founder Elisabeth Hunter during the COVID pandemic—and collaborate with charities worldwide, including ROHHAD Fight Inc, ROHHAD Association Argentina, Belgium, and Nordic. Each year, our core activities include awareness campaigns, fundraising, advocacy, forming strategic partnerships, hosting online support groups, providing one-to-one peer and family support, and…
How can I donate to ROHHAD Association?
ROHHAD Association's website is http://www.rohhadassociation.com — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Office of the Scottish Charity Regulator (OSCR) register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.