Is ROHHAD Association a legitimate charity?

The register data used for this profile lists ROHHAD Association as a registered charity (number SC045645) with the Office of the Scottish Charity Regulator (OSCR). Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.

What is ROHHAD Association's charity number?

ROHHAD Association's charity number is SC045645. Check that number on the OSCR register or this CharityCompare profile before you donate.

How do I check charity number SC045645?

Search SC045645 on the Office of the Scottish Charity Regulator (OSCR) register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.

Does ROHHAD Association have reviews and complaints?

CharityCompare does not host public user reviews for ROHHAD Association. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Office of the Scottish Charity Regulator (OSCR) or the Fundraising Regulator as appropriate.

How can I donate to ROHHAD Association?

ROHHAD Association's website listed in our register data is http://www.rohhadassociation.com. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.

When was ROHHAD Association registered as a charity?

ROHHAD Association was entered on the register on 28 May 2015.

Registered charity · No. SC045645SCIO (Scottish Charitable Incorporated Organisation)

ROHHAD Association

Independent profile · Office of the Scottish Charity Regulator (OSCR) data

ROHHAD Association is a registered charity in Scotland. Its register classifications include the advancement of education, the advancement of health, the saving of lives.

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At a glance · official register

What are the key facts about ROHHAD Association?

Reported income · year ending 2025-05-31: £33,227
Reported spending · year ending 2025-05-31: £11,103
Registered charity number: SC045645
Status in source extract: Registered
Charity type: SCIO (Scottish Charitable Incorporated Organisation)
Register contact address detail (not service area): West Dunbartonshire
Website: www.rohhadassociation.com

Quick answer

ROHHAD Association (number SC045645) is listed as registered in the OSCR snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.

What does ROHHAD Association do?

The Rohhad Association supports people affected by ROHHAD Syndrome through improved quality of life initiatives, raising awareness, and advancing research. We work closely with the ROHHAD International Consortium—founded by our co-founder Elisabeth Hunter during the COVID pandemic—and collaborate with charities worldwide, including ROHHAD Fight Inc, ROHHAD Association Argentina, Belgium, and Nordic. Each year, our core activities include awareness campaigns, fundraising, advocacy, forming strategic partnerships, hosting online support groups, providing one-to-one peer and family support, and…

Activities reported on the official register · extract 2026-10-04.

From the annual return

Pay, income, Gift Aid and registration details for ROHHAD Association

Answers ROHHAD Association gave in its annual return to the OSCR for the year ending 31 May 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.

Registration details

Registered as a charity: 28 May 2015
Where it says it operates: West Dunbartonshire

What causes is ROHHAD Association registered for?

the advancement of educationthe advancement of healththe saving of lives

Why is there no Clarity Score for ROHHAD Association yet?

Our dataset does not yet contain the detailed filing history needed to score ROHHAD Association. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. How scoring works

What should you check before donating to ROHHAD Association?

Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.

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Is this your charity?

Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.

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Frequently asked questions

Is ROHHAD Association a legitimate charity?: The register data used for this profile lists ROHHAD Association as a registered charity (number SC045645) with the Office of the Scottish Charity Regulator (OSCR). Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is ROHHAD Association's charity number?: ROHHAD Association's charity number is SC045645. Check that number on the OSCR register or this CharityCompare profile before you donate.
How do I check charity number SC045645?: Search SC045645 on the Office of the Scottish Charity Regulator (OSCR) register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does ROHHAD Association do?: The Rohhad Association supports people affected by ROHHAD Syndrome through improved quality of life initiatives, raising awareness, and advancing research. We work closely with the ROHHAD International Consortium—founded by our co-founder Elisabeth Hunter during the COVID pandemic—and collaborate with charities worldwide, including ROHHAD Fight Inc, ROHHAD Association Argentina, Belgium, and Nordic. Each year, our core activities include awareness campaigns, fundraising, advocacy, forming strategic partnerships, hosting online support groups, providing one-to-one peer and family support, and…
Does ROHHAD Association have reviews and complaints?: CharityCompare does not host public user reviews for ROHHAD Association. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Office of the Scottish Charity Regulator (OSCR) or the Fundraising Regulator as appropriate.
How can I donate to ROHHAD Association?: ROHHAD Association's website listed in our register data is http://www.rohhadassociation.com. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
When was ROHHAD Association registered as a charity?: ROHHAD Association was entered on the register on 28 May 2015.

Source: Office of the Scottish Charity Regulator (OSCR) register extract dated 2026-10-04, used under the Open Government Licence v3.0. Always verify current details on the official register entry.