Register contact address detail (not service area)
St. Albans
Registered for Gift Aid (HMRC)
Yes
Quick answer
Research SMA (number 1201716) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Research SMA do?
To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Research SMA
Answers Research SMA gave in its annual return to the Charity Commission for the year ending 24 January 2026, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
Can I claim Gift Aid, and are the trustees paid?
The register records Research SMA as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Research SMA's annual return for the year ending 24 January 2026 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Previous names on the register
Rally Round Rupert
Where it says it operates
Throughout England and Wales
Who it supports and how it works
Reported beneficiaries: Children/young People; People With Disabilities.
Reported activities: Sponsors Or Undertakes Research; Other Charitable Activities.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Research SMA registered for?
Disability
Why is there no Clarity Score for Research SMA yet?
Our dataset does not yet contain the detailed filing history needed to score Research SMA.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Research SMA?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
The register data used for this profile lists Research SMA as a registered charity (number 1201716) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Research SMA's charity number?
Research SMA's charity number is 1201716. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1201716?
Search 1201716 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Research SMA do?
To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).
Does Research SMA have reviews and complaints?
CharityCompare does not host public user reviews for Research SMA. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Research SMA?
Research SMA does not list a website in its register entry. Its official Charity Commission entry lists its contact details — CharityCompare never processes donations.
Can I claim Gift Aid on a donation to Research SMA?
The register records Research SMA as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Research SMA's trustees paid?
Research SMA's annual return for the year ending 24 January 2026 reports that no trustee received remuneration or other benefits from the charity.
What was Research SMA previously called?
The register lists this previous name for Research SMA: Rally Round Rupert.
When was Research SMA registered as a charity?
Research SMA was entered on the register on 25 January 2023.