Primary Ciliary Dyskinesia Support UK
Primary Ciliary Dyskinesia Support UK is a registered charity in England & Wales working in the advancement of health or saving of lives, based in Maidenhead.
Quick answer
Key facts
- Registered charity number
- 1049931
- Status
- Registered (active)
- Charity type
- Other
- Location
- Maidenhead
- Latest income (year ending 2024-12-31)
- £66,445
- Website
- www.pcdsupport.org.uk
What the charity does
1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. Primary Ciliary Dyskinesia Support UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
Claim this profile free to add your own description, correct details, or respond publicly. Optional partner plans add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.
Frequently asked questions
- Is Primary Ciliary Dyskinesia Support UK a legitimate charity?
- Yes. Primary Ciliary Dyskinesia Support UK is a registered charity (number 1049931) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does Primary Ciliary Dyskinesia Support UK do?
- 1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
- How can I donate to Primary Ciliary Dyskinesia Support UK?
- Primary Ciliary Dyskinesia Support UK's website is http://www.pcdsupport.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.