Independent profile · Charity Commission for England and Wales data
Pompe Support Network is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives, disability.
Pompe Support Network (number 1186383) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Pompe Support Network do?
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Pompe Support Network
Answers Pompe Support Network gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are Pompe Support Network's highest-paid staff paid?
Pompe Support Network's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Can I claim Gift Aid, and are the trustees paid?
The register records Pompe Support Network as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Pompe Support Network's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Also known as
Psn
Where it says it operates
Throughout England and Wales · Northern Ireland · Scotland
Who it supports and how it works
Reported beneficiaries: Children/young People; Elderly/old People; People With Disabilities.
Reported activities: Makes Grants To Individuals; Makes Grants To Organisations; Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Pompe Support Network registered for?
The Advancement Of Health Or Saving Of LivesDisability
Why is there no Clarity Score for Pompe Support Network yet?
Our dataset does not yet contain the detailed filing history needed to score Pompe Support Network.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Pompe Support Network?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
The register data used for this profile lists Pompe Support Network as a registered charity (number 1186383) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Pompe Support Network's charity number?
Pompe Support Network's charity number is 1186383. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1186383?
Search 1186383 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Pompe Support Network do?
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences
Does Pompe Support Network have reviews and complaints?
CharityCompare does not host public user reviews for Pompe Support Network. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Pompe Support Network?
Pompe Support Network's website listed in our register data is http://www.pompe.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Pompe Support Network's chief executive paid?
The Charity Commission register does not name individual salaries. Pompe Support Network's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Pompe Support Network?
The register records Pompe Support Network as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Pompe Support Network's trustees paid?
Pompe Support Network's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Pompe Support Network registered as a charity?
Pompe Support Network was entered on the register on 15 November 2019.