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Registered charity · No. 1186383CIOBuriton

Pompe Support Network

Pompe Support Network is a registered charity in England & Wales working in the advancement of health or saving of lives, disability, based in Buriton.

Quick answer

Pompe Support Network is a registered charity (number 1186383) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives; disability. Its latest reported income was £93,540 (year ending 2025-03-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

Key facts

Registered charity number
1186383
Status
Registered (active)
Charity type
CIO
Location
Buriton
Latest income (year ending 2025-03-31)
£93,540

What the charity does

The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences

Registered causes

The Advancement Of Health Or Saving Of LivesDisability

Why there's no Clarity Score yet

The Clarity Score is computed from full financial filing history. Pompe Support Network is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works

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Frequently asked questions

Is Pompe Support Network a legitimate charity?
Yes. Pompe Support Network is a registered charity (number 1186383) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
What does Pompe Support Network do?
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences
How can I donate to Pompe Support Network?
Pompe Support Network's website is http://www.pompe.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.