Is Noonan Syndrome Association a legitimate charity?

Yes. Noonan Syndrome Association is a registered charity (number 1140671) regulated by the Charity Commission for England and Wales. You can verify it on the official register.

How can I donate to Noonan Syndrome Association?

Noonan Syndrome Association's website is http://www.noonansyndrome.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Registered charity · No. 114067123-25 Old Row, Whalley Road

Noonan Syndrome Association

Noonan Syndrome Association is a registered charity in England & Wales working in the advancement of health or saving of lives, disability, based in 23-25 Old Row, Whalley Road.

Quick answer

Noonan Syndrome Association is a registered charity (number 1140671) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives; disability. Its latest reported income was £48,067 (year ending 2025-03-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

Key facts

Registered charity number: 1140671
Status: Registered (active)
Charity type: Other
Location: 23-25 Old Row, Whalley Road
Latest income (year ending 2025-03-31): £48,067
Website: www.noonansyndrome.org.uk

What the charity does

The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition

Registered causes

The Advancement Of Health Or Saving Of LivesDisability

Why there's no Clarity Score yet

The Clarity Score is computed from full financial filing history. Noonan Syndrome Association is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works

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Frequently asked questions

Is Noonan Syndrome Association a legitimate charity?: Yes. Noonan Syndrome Association is a registered charity (number 1140671) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
What does Noonan Syndrome Association do?: The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition
How can I donate to Noonan Syndrome Association?: Noonan Syndrome Association's website is http://www.noonansyndrome.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.