Registered charity · No. 1134499Charitable company
MD
Myotonic Dystrophy Support Group
Independent profile · Charity Commission for England and Wales data
Myotonic Dystrophy Support Group is a registered charity in England & Wales. Its register classifications include general charitable purposes, education/training, the advancement of health or saving of lives.
Myotonic Dystrophy Support Group (number 1134499) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Myotonic Dystrophy Support Group do?
To offer assistance, support and information to those people affected by Myotonic Dystrophy
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Myotonic Dystrophy Support Group
Answers Myotonic Dystrophy Support Group gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are Myotonic Dystrophy Support Group's highest-paid staff paid?
Myotonic Dystrophy Support Group's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Can I claim Gift Aid, and are the trustees paid?
The register records Myotonic Dystrophy Support Group as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Myotonic Dystrophy Support Group's annual return for the year ending 31 December 2025 reports that one or more trustees received payments or other benefits (payments for providing services). Charity law allows this only in limited circumstances; the trustees' annual report should explain it.
Throughout England and Wales · Scotland · Northern Ireland
Who it supports and how it works
Reported beneficiaries: Children/young People; Elderly/old People; People With Disabilities; Other Charities Or Voluntary Bodies; The General Public/mankind.
Reported activities: Makes Grants To Individuals; Makes Grants To Organisations; Provides Human Resources; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Myotonic Dystrophy Support Group registered for?
General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives
Why is there no Clarity Score for Myotonic Dystrophy Support Group yet?
Our dataset does not yet contain the detailed filing history needed to score Myotonic Dystrophy Support Group.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Myotonic Dystrophy Support Group?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
Is Myotonic Dystrophy Support Group a legitimate charity?
The register data used for this profile lists Myotonic Dystrophy Support Group as a registered charity (number 1134499) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Myotonic Dystrophy Support Group's charity number?
Myotonic Dystrophy Support Group's charity number is 1134499. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1134499?
Search 1134499 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Myotonic Dystrophy Support Group do?
To offer assistance, support and information to those people affected by Myotonic Dystrophy
Does Myotonic Dystrophy Support Group have reviews and complaints?
CharityCompare does not host public user reviews for Myotonic Dystrophy Support Group. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Myotonic Dystrophy Support Group?
Myotonic Dystrophy Support Group's website listed in our register data is http://myotonicdystrophysupportgroup.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Myotonic Dystrophy Support Group's chief executive paid?
The Charity Commission register does not name individual salaries. Myotonic Dystrophy Support Group's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Myotonic Dystrophy Support Group?
The register records Myotonic Dystrophy Support Group as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Myotonic Dystrophy Support Group's trustees paid?
Myotonic Dystrophy Support Group's annual return for the year ending 31 December 2025 reports that one or more trustees received payments or other benefits (payments for providing services). Charity law allows this only in limited circumstances; the trustees' annual report should explain it.
When was Myotonic Dystrophy Support Group registered as a charity?
Myotonic Dystrophy Support Group was entered on the register on 25 February 2010. It is also a company registered at Companies House (company number 07144171).