Leber's Hereditary Optic Neuropathy Society
Leber's Hereditary Optic Neuropathy Society is a registered charity in England & Wales working in the advancement of health or saving of lives, disability, based in 133 Queens Road.
Quick answer
Key facts
- Registered charity number
- 1157206
- Status
- Registered (active)
- Charity type
- CIO
- Location
- 133 Queens Road
- Latest income (year ending 2025-05-31)
- £2,265
- Website
- www.LHONSociety.org
What the charity does
We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. Leber's Hereditary Optic Neuropathy Society is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
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Frequently asked questions
- Is Leber's Hereditary Optic Neuropathy Society a legitimate charity?
- Yes. Leber's Hereditary Optic Neuropathy Society is a registered charity (number 1157206) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does Leber's Hereditary Optic Neuropathy Society do?
- We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.
- How can I donate to Leber's Hereditary Optic Neuropathy Society?
- Leber's Hereditary Optic Neuropathy Society's website is http://www.LHONSociety.org/ — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.