Independent profile · Charity Commission for England and Wales data
Leber's Hereditary Optic Neuropathy Society is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives, disability.
Leber's Hereditary Optic Neuropathy Society (number 1157206) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Leber's Hereditary Optic Neuropathy Society do?
We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Leber's Hereditary Optic Neuropathy Society
Answers Leber's Hereditary Optic Neuropathy Society gave in its annual return to the Charity Commission for the year ending 31 May 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
Can I claim Gift Aid, and are the trustees paid?
The register does not record Leber's Hereditary Optic Neuropathy Society as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.
Leber's Hereditary Optic Neuropathy Society's annual return for the year ending 31 May 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Also known as
Lhon Society
Where it says it operates
Ireland · Scotland · Northern Ireland · Isle of Man
Who it supports and how it works
Reported beneficiaries: People With Disabilities.
Reported activities: Makes Grants To Organisations; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Leber's Hereditary Optic Neuropathy Society registered for?
The Advancement Of Health Or Saving Of LivesDisability
Why is there no Clarity Score for Leber's Hereditary Optic Neuropathy Society yet?
Our dataset does not yet contain the detailed filing history needed to score Leber's Hereditary Optic Neuropathy Society.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Leber's Hereditary Optic Neuropathy Society?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
Is Leber's Hereditary Optic Neuropathy Society a legitimate charity?
The register data used for this profile lists Leber's Hereditary Optic Neuropathy Society as a registered charity (number 1157206) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Leber's Hereditary Optic Neuropathy Society's charity number?
Leber's Hereditary Optic Neuropathy Society's charity number is 1157206. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1157206?
Search 1157206 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Leber's Hereditary Optic Neuropathy Society do?
We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.
Does Leber's Hereditary Optic Neuropathy Society have reviews and complaints?
CharityCompare does not host public user reviews for Leber's Hereditary Optic Neuropathy Society. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Leber's Hereditary Optic Neuropathy Society?
Leber's Hereditary Optic Neuropathy Society's website listed in our register data is http://www.LHONSociety.org/. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
Can I claim Gift Aid on a donation to Leber's Hereditary Optic Neuropathy Society?
The register does not record Leber's Hereditary Optic Neuropathy Society as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.
Are Leber's Hereditary Optic Neuropathy Society's trustees paid?
Leber's Hereditary Optic Neuropathy Society's annual return for the year ending 31 May 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Leber's Hereditary Optic Neuropathy Society registered as a charity?
Leber's Hereditary Optic Neuropathy Society was entered on the register on 28 May 2014.