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Registered charity · No. 1208059CIOwaterside business park

Kleefstra Syndrome UK

Kleefstra Syndrome UK is a registered charity in England & Wales working in disability, based in waterside business park.

Quick answer

Kleefstra Syndrome UK is a registered charity (number 1208059) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: disability. Its latest reported income was £15,339 (year ending 2025-12-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

Key facts

Registered charity number
1208059
Status
Registered (active)
Charity type
CIO
Location
waterside business park
Latest income (year ending 2025-12-31)
£15,339

What the charity does

The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome

Registered causes

Disability

Why there's no Clarity Score yet

The Clarity Score is computed from full financial filing history. Kleefstra Syndrome UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works

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Frequently asked questions

Is Kleefstra Syndrome UK a legitimate charity?
Yes. Kleefstra Syndrome UK is a registered charity (number 1208059) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
What does Kleefstra Syndrome UK do?
The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome
How can I donate to Kleefstra Syndrome UK?
Kleefstra Syndrome UK's website is http://www.kleefstrasyndrome.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.