Independent profile · Charity Commission for England and Wales data
Keep Me Breathing is a registered charity in England & Wales. Its register classifications include general charitable purposes, the advancement of health or saving of lives.
Keep Me Breathing (number 1201757) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Keep Me Breathing do?
Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Keep Me Breathing
Answers Keep Me Breathing gave in its annual return to the Charity Commission for the year ending 28 February 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are Keep Me Breathing's highest-paid staff paid?
Keep Me Breathing's annual return for the year ending 28 February 2025 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Can I claim Gift Aid, and are the trustees paid?
The register records Keep Me Breathing as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Keep Me Breathing's annual return for the year ending 28 February 2025 reports that one or more trustees received payments or other benefits (payments for providing services). Charity law allows this only in limited circumstances; the trustees' annual report should explain it.
Registration details
Registered as a charity
Where it says it operates
Throughout England and Wales
Who it supports and how it works
Reported beneficiaries: The General Public/mankind.
Reported activities: Makes Grants To Organisations; Provides Advocacy/advice/information.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Keep Me Breathing registered for?
General Charitable PurposesThe Advancement Of Health Or Saving Of Lives
Why is there no Clarity Score for Keep Me Breathing yet?
Our dataset does not yet contain the detailed filing history needed to score Keep Me Breathing.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Keep Me Breathing?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
The register data used for this profile lists Keep Me Breathing as a registered charity (number 1201757) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Keep Me Breathing's charity number?
Keep Me Breathing's charity number is 1201757. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1201757?
Search 1201757 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Keep Me Breathing do?
Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
Does Keep Me Breathing have reviews and complaints?
CharityCompare does not host public user reviews for Keep Me Breathing. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Keep Me Breathing?
Keep Me Breathing's website listed in our register data is http://keepmebreathing.com. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Keep Me Breathing's chief executive paid?
The Charity Commission register does not name individual salaries. Keep Me Breathing's annual return for the year ending 28 February 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Keep Me Breathing?
The register records Keep Me Breathing as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Keep Me Breathing's trustees paid?
Keep Me Breathing's annual return for the year ending 28 February 2025 reports that one or more trustees received payments or other benefits (payments for providing services). Charity law allows this only in limited circumstances; the trustees' annual report should explain it.
When was Keep Me Breathing registered as a charity?
Keep Me Breathing was entered on the register on 27 January 2023.