International Prader-Willi Syndrome Organisation
International Prader-Willi Syndrome Organisation is a registered charity in England & Wales working in the advancement of health or saving of lives, disability, based in Salisbury House.
Quick answer
Key facts
- Registered charity number
- 1182873
- Status
- Registered (active)
- Charity type
- CIO
- Location
- Salisbury House
- Latest income (year ending 2025-12-31)
- £206,698
- Website
- www.ipwso.org
What the charity does
IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. International Prader-Willi Syndrome Organisation is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
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Frequently asked questions
- Is International Prader-Willi Syndrome Organisation a legitimate charity?
- Yes. International Prader-Willi Syndrome Organisation is a registered charity (number 1182873) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does International Prader-Willi Syndrome Organisation do?
- IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.
- How can I donate to International Prader-Willi Syndrome Organisation?
- International Prader-Willi Syndrome Organisation's website is https://www.ipwso.org/ — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.