International Niemann-Pick Disease Registry
International Niemann-Pick Disease Registry is a registered charity in England & Wales working in education/training, the advancement of health or saving of lives, based in North Sands Business Centre.
Quick answer
Key facts
- Registered charity number
- 1175311
- Status
- Registered (active)
- Charity type
- Charitable company
- Location
- North Sands Business Centre
- Latest income (year ending 2025-03-31)
- £447,821
- Website
- www.inpdr.org
What the charity does
The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. International Niemann-Pick Disease Registry is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
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Frequently asked questions
- Is International Niemann-Pick Disease Registry a legitimate charity?
- Yes. International Niemann-Pick Disease Registry is a registered charity (number 1175311) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does International Niemann-Pick Disease Registry do?
- The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
- How can I donate to International Niemann-Pick Disease Registry?
- International Niemann-Pick Disease Registry's website is http://www.inpdr.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.