International Niemann-Pick Disease Registry
International Niemann-Pick Disease Registry is a registered charity in England & Wales working in education/training, the advancement of health or saving of lives, based in North Sands Business Centre.
Independent UK charity profile · register facts and available accounts
Quick answer
What are the key facts about International Niemann-Pick Disease Registry?
- Registered charity number
- 1175311
- Status in source extract
- Registered
- Charity type
- Charitable company
- Register contact locality (not service coverage)
- North Sands Business Centre
- Latest income (year ending 2025-03-31)
- £447,821
- Website
- www.inpdr.org
What does International Niemann-Pick Disease Registry do?
The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
Who it supports and how it works
Reported beneficiaries: Other Defined Groups.
Reported activities: Provides Services; Acts As An Umbrella Or Resource Body.
Classifications supplied to the register; extract 2026-09-08. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is International Niemann-Pick Disease Registry registered for?
Why is there no Clarity Score for International Niemann-Pick Disease Registry yet?
The Clarity Score is computed from full financial filing history. International Niemann-Pick Disease Registry is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. A rating can be added when the charity enters our scoring dataset with enough filing data. Payment never influences a rating. How scoring works
What should you check before donating to International Niemann-Pick Disease Registry?
- Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
- Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
- Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
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Frequently asked questions
- Is International Niemann-Pick Disease Registry a legitimate charity?
- The register data used for this profile lists International Niemann-Pick Disease Registry as a registered charity (number 1175311) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
- What is International Niemann-Pick Disease Registry's charity number?
- International Niemann-Pick Disease Registry's charity number is 1175311. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
- How do I check charity number 1175311?
- Search 1175311 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
- What does International Niemann-Pick Disease Registry do?
- The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
- Does International Niemann-Pick Disease Registry have reviews and complaints?
- CharityCompare does not host public user reviews for International Niemann-Pick Disease Registry. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
- How can I donate to International Niemann-Pick Disease Registry?
- International Niemann-Pick Disease Registry's website listed in our register data is http://www.inpdr.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
Source: Charity Commission for England and Wales register extract dated 2026-09-08, used under the Open Government Licence v3.0. Always verify current details on the official register entry.