Skip to content
Registered charity · No. 1193166CIO

Immunodeficiency UK

Independent profile · Charity Commission for England and Wales data

Immunodeficiency UK is a registered charity in England & Wales. Its register classifications include education/training, the advancement of health or saving of lives, disability.

Register extract · Not yet rated

Visit charity website Check official registration

Work at Immunodeficiency UK? Claim this profile free to add your own description, logo and links.

At a glance · official register

What are the key facts about Immunodeficiency UK?

Reported income · year ending 2025-04-01
£115,552
Reported spending · year ending 2025-04-01
£114,253
Registered charity number
1193166
Status in source extract
Registered
Charity type
CIO
Register contact address detail (not service area)
C/O Tudor John Accountants
Registered for Gift Aid (HMRC)
Not recorded

Quick answer

Immunodeficiency UK (number 1193166) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.

What does Immunodeficiency UK do?

Advancement of health and the relief of people affected by primary and secondary immunodeficiency and their families by providing assistance, advice or guidance in relation to managing their condition, treatment and quality of life; promoting awareness and understanding of these conditions and to encourage and support research into causes, treatments and prevention.

Activities reported on the official register · extract 2026-10-04.

From the annual return

Pay, income, Gift Aid and registration details for Immunodeficiency UK

Answers Immunodeficiency UK gave in its annual return to the Charity Commission for the year ending 1 April 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.

How much are Immunodeficiency UK's highest-paid staff paid?

Immunodeficiency UK's annual return for the year ending 1 April 2025 reports 1 employee paid more than £60,000. The highest reported pay band is £60,001–£70,000 (1 employee).

Employees paid over £60,000, by salary band
£60,001–£70,0001

The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.

Can I claim Gift Aid, and are the trustees paid?

The register does not record Immunodeficiency UK as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.

Immunodeficiency UK's annual return for the year ending 1 April 2025 reports that no trustee received remuneration or other benefits from the charity.

Registration details

Registered as a charity
Also known as
Primary Immunodeficiency UK
Where it says it operates
Throughout England and Wales · Northern Ireland · Scotland

Who it supports and how it works

Reported beneficiaries: Children/young People; Elderly/old People; People With Disabilities.

Reported activities: Makes Grants To Individuals; Makes Grants To Organisations; Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research; Acts As An Umbrella Or Resource Body.

Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.

What causes is Immunodeficiency UK registered for?

Education/trainingThe Advancement Of Health Or Saving Of LivesDisability

Why is there no Clarity Score for Immunodeficiency UK yet?

Our dataset does not yet contain the detailed filing history needed to score Immunodeficiency UK. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. How scoring works

What should you check before donating to Immunodeficiency UK?

  • Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
  • Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
  • Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.

How to read charity accounts · Explore rated charities

Is this your charity?

Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.

Claim this profile — free Visit charity website

Frequently asked questions

Is Immunodeficiency UK a legitimate charity?
The register data used for this profile lists Immunodeficiency UK as a registered charity (number 1193166) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Immunodeficiency UK's charity number?
Immunodeficiency UK's charity number is 1193166. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1193166?
Search 1193166 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Immunodeficiency UK do?
Advancement of health and the relief of people affected by primary and secondary immunodeficiency and their families by providing assistance, advice or guidance in relation to managing their condition, treatment and quality of life; promoting awareness and understanding of these conditions and to encourage and support research into causes, treatments and prevention.
Does Immunodeficiency UK have reviews and complaints?
CharityCompare does not host public user reviews for Immunodeficiency UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Immunodeficiency UK?
Immunodeficiency UK's website listed in our register data is http://www.immunodeficiencyuk.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Immunodeficiency UK's chief executive paid?
The Charity Commission register does not name individual salaries. Immunodeficiency UK's annual return for the year ending 1 April 2025 reports 1 employee paid more than £60,000. The highest reported pay band is £60,001–£70,000 (1 employee). Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Immunodeficiency UK?
The register does not record Immunodeficiency UK as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.
Are Immunodeficiency UK's trustees paid?
Immunodeficiency UK's annual return for the year ending 1 April 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Immunodeficiency UK registered as a charity?
Immunodeficiency UK was entered on the register on 20 January 2021.

Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the Open Government Licence v3.0. Always verify current details on the official register entry.