Independent profile · Charity Commission for England and Wales data
Gorlin Syndrome Group is a registered charity in England & Wales. Its register classifications include general charitable purposes, the advancement of health or saving of lives.
Gorlin Syndrome Group (number 1197282) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Gorlin Syndrome Group do?
1. The relief of sickness and the protection and preservation of the health of persons affected by Gorlin syndrome and any related condition, their families and carers2. The advancement of the education of the medical professional and the general public3. The promotion of research into the causes, effects, treatment and management of Gorlin syndrome and to disseminate any useful results
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Gorlin Syndrome Group
Answers Gorlin Syndrome Group gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
Can I claim Gift Aid, and are the trustees paid?
The register records Gorlin Syndrome Group as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Gorlin Syndrome Group's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Where it says it operates
Throughout England and Wales
Who it supports and how it works
Reported beneficiaries: Other Defined Groups; The General Public/mankind.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Gorlin Syndrome Group registered for?
General Charitable PurposesThe Advancement Of Health Or Saving Of Lives
Why is there no Clarity Score for Gorlin Syndrome Group yet?
Our dataset does not yet contain the detailed filing history needed to score Gorlin Syndrome Group.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Gorlin Syndrome Group?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
The register data used for this profile lists Gorlin Syndrome Group as a registered charity (number 1197282) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Gorlin Syndrome Group's charity number?
Gorlin Syndrome Group's charity number is 1197282. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1197282?
Search 1197282 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Gorlin Syndrome Group do?
1. The relief of sickness and the protection and preservation of the health of persons affected by Gorlin syndrome and any related condition, their families and carers2. The advancement of the education of the medical professional and the general public3. The promotion of research into the causes, effects, treatment and management of Gorlin syndrome and to disseminate any useful results
Does Gorlin Syndrome Group have reviews and complaints?
CharityCompare does not host public user reviews for Gorlin Syndrome Group. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Gorlin Syndrome Group?
Gorlin Syndrome Group's website listed in our register data is https://gorlingroup.org/. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
Can I claim Gift Aid on a donation to Gorlin Syndrome Group?
The register records Gorlin Syndrome Group as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Gorlin Syndrome Group's trustees paid?
Gorlin Syndrome Group's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Gorlin Syndrome Group registered as a charity?
Gorlin Syndrome Group was entered on the register on 22 December 2021.