Registered charity · No. 1175622Charitable company
FD
Fibrous Dysplasia Support Society
Independent profile · Charity Commission for England and Wales data
Fibrous Dysplasia Support Society is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives.
Fibrous Dysplasia Support Society (number 1175622) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Fibrous Dysplasia Support Society do?
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Fibrous Dysplasia Support Society
Answers Fibrous Dysplasia Support Society gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
Can I claim Gift Aid, and are the trustees paid?
The register records Fibrous Dysplasia Support Society as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Fibrous Dysplasia Support Society's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Fibrous Dysplasia Support Society registered for?
The Advancement Of Health Or Saving Of Lives
Why is there no Clarity Score for Fibrous Dysplasia Support Society yet?
Our dataset does not yet contain the detailed filing history needed to score Fibrous Dysplasia Support Society.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
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What should you check before donating to Fibrous Dysplasia Support Society?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
Is Fibrous Dysplasia Support Society a legitimate charity?
The register data used for this profile lists Fibrous Dysplasia Support Society as a registered charity (number 1175622) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Fibrous Dysplasia Support Society's charity number?
Fibrous Dysplasia Support Society's charity number is 1175622. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1175622?
Search 1175622 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Fibrous Dysplasia Support Society do?
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
Does Fibrous Dysplasia Support Society have reviews and complaints?
CharityCompare does not host public user reviews for Fibrous Dysplasia Support Society. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Fibrous Dysplasia Support Society?
Fibrous Dysplasia Support Society's website listed in our register data is http://www.fdssuk.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
Can I claim Gift Aid on a donation to Fibrous Dysplasia Support Society?
The register records Fibrous Dysplasia Support Society as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Fibrous Dysplasia Support Society's trustees paid?
Fibrous Dysplasia Support Society's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Fibrous Dysplasia Support Society registered as a charity?
Fibrous Dysplasia Support Society was entered on the register on 8 November 2017. It is also a company registered at Companies House (company number 10336269).