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Registered charity · No. 1175622Charitable companySomercotes

Fibrous Dysplasia Support Society

Fibrous Dysplasia Support Society is a registered charity in England & Wales working in the advancement of health or saving of lives, based in Somercotes.

Quick answer

Fibrous Dysplasia Support Society is a registered charity (number 1175622) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives. Its latest reported income was £14,123 (year ending 2025-03-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

Key facts

Registered charity number
1175622
Status
Registered (active)
Charity type
Charitable company
Location
Somercotes
Latest income (year ending 2025-03-31)
£14,123

What the charity does

The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.

Registered causes

The Advancement Of Health Or Saving Of Lives

Why there's no Clarity Score yet

The Clarity Score is computed from full financial filing history. Fibrous Dysplasia Support Society is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works

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Frequently asked questions

Is Fibrous Dysplasia Support Society a legitimate charity?
Yes. Fibrous Dysplasia Support Society is a registered charity (number 1175622) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
What does Fibrous Dysplasia Support Society do?
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
How can I donate to Fibrous Dysplasia Support Society?
Fibrous Dysplasia Support Society's website is http://www.fdssuk.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.