Desmoid Aid UK
Desmoid Aid UK is a registered charity in England & Wales working in general charitable purposes, based in Ockenden Road.
Quick answer
Key facts
- Registered charity number
- 1207309
- Status
- Registered (active)
- Charity type
- CIO
- Location
- Ockenden Road
- Latest income (year ending 2025-03-31)
- £8,134
- Website
- www.desmoidaiduk.com
What the charity does
Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. Desmoid Aid UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
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Frequently asked questions
- Is Desmoid Aid UK a legitimate charity?
- Yes. Desmoid Aid UK is a registered charity (number 1207309) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does Desmoid Aid UK do?
- Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.
- How can I donate to Desmoid Aid UK?
- Desmoid Aid UK's website is http://www.desmoidaiduk.com — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.