Cystinosis Foundation of the UK
Cystinosis Foundation of the UK is a registered charity in England & Wales working in the advancement of health or saving of lives, based in Unit 81304.
Quick answer
Key facts
- Registered charity number
- 1074885
- Status
- Registered (active)
- Charity type
- Other
- Location
- Unit 81304
- Latest income (year ending 2025-03-31)
- £34,431
- Website
- www.cystinosis.org.uk
What the charity does
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
Registered causes
Why there's no Clarity Score yet
The Clarity Score is computed from full financial filing history. Cystinosis Foundation of the UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
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Frequently asked questions
- Is Cystinosis Foundation of the UK a legitimate charity?
- Yes. Cystinosis Foundation of the UK is a registered charity (number 1074885) regulated by the Charity Commission for England and Wales. You can verify it on the official register.
- What does Cystinosis Foundation of the UK do?
- To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
- How can I donate to Cystinosis Foundation of the UK?
- Cystinosis Foundation of the UK's website is http://www.cystinosis.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-18, used under the Open Government Licence v3.0. Always verify current details on the official register entry.