Is Ciliopathy Alliance a legitimate charity?

The register data used for this profile lists Ciliopathy Alliance as a registered charity (number 1148034) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.

What is Ciliopathy Alliance's charity number?

Ciliopathy Alliance's charity number is 1148034. Check that number on the Charity Commission register or this CharityCompare profile before you donate.

How do I check charity number 1148034?

Search 1148034 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.

Does Ciliopathy Alliance have reviews and complaints?

CharityCompare does not host public user reviews for Ciliopathy Alliance. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.

How can I donate to Ciliopathy Alliance?

Ciliopathy Alliance's website listed in our register data is http://www.ciliopathyalliance.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.

When was Ciliopathy Alliance registered as a charity?

Ciliopathy Alliance was entered on the register on 10 July 2012. It is also a company registered at Companies House (company number 07842342).

Registered charity · No. 1148034Charitable company

Ciliopathy Alliance

Independent profile · Charity Commission for England and Wales data

Ciliopathy Alliance is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives.

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Work at Ciliopathy Alliance? Claim this profile free to add your own description, logo and links.

At a glance · official register

What are the key facts about Ciliopathy Alliance?

Reported income · year ending 2025-03-31: £1,689
Reported spending · year ending 2025-03-31: £10,352
Registered charity number: 1148034
Status in source extract: Registered
Charity type: Charitable company
Register contact address detail (not service area): 30 Guildford Street
Registered for Gift Aid (HMRC): Yes
Website: www.ciliopathyalliance.org

Quick answer

Ciliopathy Alliance (number 1148034) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.

What does Ciliopathy Alliance do?

Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.

Activities reported on the official register · extract 2026-10-04.

From the annual return

Pay, income, Gift Aid and registration details for Ciliopathy Alliance

Answers Ciliopathy Alliance gave in its annual return to the Charity Commission, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.

Can I claim Gift Aid, and are the trustees paid?

The register records Ciliopathy Alliance as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid

Registration details

Registered as a charity: 10 July 2012
Company number: 07842342 (Companies House)
Where it says it operates: Throughout England and Wales

Who it supports and how it works

Reported beneficiaries: Children/young People; Elderly/old People; People With Disabilities; Other Charities Or Voluntary Bodies.

Reported activities: Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research; Acts As An Umbrella Or Resource Body.

Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.

What causes is Ciliopathy Alliance registered for?

The Advancement Of Health Or Saving Of Lives

Why is there no Clarity Score for Ciliopathy Alliance yet?

Our dataset does not yet contain the detailed filing history needed to score Ciliopathy Alliance. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. How scoring works

What should you check before donating to Ciliopathy Alliance?

Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.

How to read charity accounts · Explore rated charities

Is this your charity?

Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.

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Frequently asked questions

Is Ciliopathy Alliance a legitimate charity?: The register data used for this profile lists Ciliopathy Alliance as a registered charity (number 1148034) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Ciliopathy Alliance's charity number?: Ciliopathy Alliance's charity number is 1148034. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1148034?: Search 1148034 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Ciliopathy Alliance do?: Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.
Does Ciliopathy Alliance have reviews and complaints?: CharityCompare does not host public user reviews for Ciliopathy Alliance. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Ciliopathy Alliance?: Ciliopathy Alliance's website listed in our register data is http://www.ciliopathyalliance.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
Can I claim Gift Aid on a donation to Ciliopathy Alliance?: The register records Ciliopathy Alliance as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
When was Ciliopathy Alliance registered as a charity?: Ciliopathy Alliance was entered on the register on 10 July 2012. It is also a company registered at Companies House (company number 07842342).

Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the Open Government Licence v3.0. Always verify current details on the official register entry.