Independent profile · Charity Commission for England and Wales data
CdLS Foundation UK & Ireland is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives, disability.
CdLS Foundation UK & Ireland (number 1054033) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does CdLS Foundation UK & Ireland do?
Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for CdLS Foundation UK & Ireland
Answers CdLS Foundation UK & Ireland gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are CdLS Foundation UK & Ireland's highest-paid staff paid?
CdLS Foundation UK & Ireland's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Can I claim Gift Aid, and are the trustees paid?
The register records CdLS Foundation UK & Ireland as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
CdLS Foundation UK & Ireland's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Also known as
Cd L S Foundation
Previous names on the register
Cornelia de Lange Syndrome Foundation UK
Where it says it operates
Throughout England and Wales · Scotland · Northern Ireland
Who it supports and how it works
Reported beneficiaries: People With Disabilities.
Reported activities: Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is CdLS Foundation UK & Ireland registered for?
The Advancement Of Health Or Saving Of LivesDisability
Why is there no Clarity Score for CdLS Foundation UK & Ireland yet?
Our dataset does not yet contain the detailed filing history needed to score CdLS Foundation UK & Ireland.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to CdLS Foundation UK & Ireland?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
Is CdLS Foundation UK & Ireland a legitimate charity?
The register data used for this profile lists CdLS Foundation UK & Ireland as a registered charity (number 1054033) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is CdLS Foundation UK & Ireland's charity number?
CdLS Foundation UK & Ireland's charity number is 1054033. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1054033?
Search 1054033 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does CdLS Foundation UK & Ireland do?
Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.
Does CdLS Foundation UK & Ireland have reviews and complaints?
CharityCompare does not host public user reviews for CdLS Foundation UK & Ireland. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to CdLS Foundation UK & Ireland?
CdLS Foundation UK & Ireland's website listed in our register data is http://www.cdls.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is CdLS Foundation UK & Ireland's chief executive paid?
The Charity Commission register does not name individual salaries. CdLS Foundation UK & Ireland's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to CdLS Foundation UK & Ireland?
The register records CdLS Foundation UK & Ireland as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are CdLS Foundation UK & Ireland's trustees paid?
CdLS Foundation UK & Ireland's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.
What was CdLS Foundation UK & Ireland previously called?
The register lists this previous name for CdLS Foundation UK & Ireland: Cornelia de Lange Syndrome Foundation UK.
When was CdLS Foundation UK & Ireland registered as a charity?
CdLS Foundation UK & Ireland was entered on the register on 25 March 1996.