Cdkl5 UK
Cdkl5 UK is a registered charity in England & Wales working in disability, based in Henleaze House.
Quick answer
What are the key facts about Cdkl5 UK?
- Registered charity number
- 1207922
- Status
- Registered (active)
- Charity type
- CIO
- Location
- Henleaze House
- Latest income (year ending 2025-03-31)
- £60,140
- Website
- www.curecdkl5.org.uk
What does Cdkl5 UK do?
To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.
What causes is Cdkl5 UK registered for?
Why is there no Clarity Score for Cdkl5 UK yet?
The Clarity Score is computed from full financial filing history. Cdkl5 UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
Is this your charity?
Claim this profile free to add your own description, correct details, or respond publicly. Optional partner plans add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.
Frequently asked questions
- Is Cdkl5 UK a legitimate charity?
- Yes. Cdkl5 UK is a legitimate registered charity (charity number 1207922) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.
- What is Cdkl5 UK's charity number?
- Cdkl5 UK's charity number is 1207922. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
- How do I check charity number 1207922?
- Search 1207922 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
- What does Cdkl5 UK do?
- To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.
- Does Cdkl5 UK have reviews and complaints?
- CharityCompare does not host public user reviews for Cdkl5 UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
- How can I donate to Cdkl5 UK?
- Cdkl5 UK's website is http://www.curecdkl5.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the Open Government Licence v3.0. Always verify current details on the official register entry.