Independent profile · Charity Commission for England and Wales data
Cambridge Rare Disease Network is a registered charity in England & Wales. Its register classifications include education/training, the advancement of health or saving of lives, disability.
Cambridge Rare Disease Network (number 1166365) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Cambridge Rare Disease Network do?
CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Cambridge Rare Disease Network
Answers Cambridge Rare Disease Network gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are Cambridge Rare Disease Network's highest-paid staff paid?
Cambridge Rare Disease Network's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Can I claim Gift Aid, and are the trustees paid?
The register records Cambridge Rare Disease Network as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Cambridge Rare Disease Network's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Also known as
Crdn; CamRARE
Where it says it operates
Throughout England and Wales
Who it supports and how it works
Reported beneficiaries: Children/young People; People With Disabilities; Other Charities Or Voluntary Bodies; The General Public/mankind.
Reported activities: Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research; Acts As An Umbrella Or Resource Body.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Cambridge Rare Disease Network registered for?
Education/trainingThe Advancement Of Health Or Saving Of LivesDisability
Why is there no Clarity Score for Cambridge Rare Disease Network yet?
Our dataset does not yet contain the detailed filing history needed to score Cambridge Rare Disease Network.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Cambridge Rare Disease Network?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
Is Cambridge Rare Disease Network a legitimate charity?
The register data used for this profile lists Cambridge Rare Disease Network as a registered charity (number 1166365) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Cambridge Rare Disease Network's charity number?
Cambridge Rare Disease Network's charity number is 1166365. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1166365?
Search 1166365 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Cambridge Rare Disease Network do?
CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.
Does Cambridge Rare Disease Network have reviews and complaints?
CharityCompare does not host public user reviews for Cambridge Rare Disease Network. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Cambridge Rare Disease Network?
Cambridge Rare Disease Network's website listed in our register data is http://www.camraredisease.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Cambridge Rare Disease Network's chief executive paid?
The Charity Commission register does not name individual salaries. Cambridge Rare Disease Network's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Cambridge Rare Disease Network?
The register records Cambridge Rare Disease Network as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Cambridge Rare Disease Network's trustees paid?
Cambridge Rare Disease Network's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Cambridge Rare Disease Network registered as a charity?
Cambridge Rare Disease Network was entered on the register on 5 April 2016.