Independent profile · Charity Commission for England and Wales data
Batten Disease Family Association CIO is a registered charity in England & Wales. Its register classifications include education/training, the advancement of health or saving of lives, disability.
Batten Disease Family Association CIO (number 1205650) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Batten Disease Family Association CIO do?
A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Batten Disease Family Association CIO
Answers Batten Disease Family Association CIO gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are Batten Disease Family Association CIO's highest-paid staff paid?
Batten Disease Family Association CIO's annual return for the year ending 31 December 2025 reports 1 employee paid more than £60,000. The highest reported pay band is £70,001–£80,000 (1 employee).
Employees paid over £60,000, by salary band
£70,001–£80,000
1
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Can I claim Gift Aid, and are the trustees paid?
Batten Disease Family Association CIO's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Also known as
Bdfa
Where it says it operates
Throughout England and Wales · Scotland · Northern Ireland
Who it supports and how it works
Reported beneficiaries: Children/young People; People With Disabilities.
Reported activities: Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Batten Disease Family Association CIO registered for?
Education/trainingThe Advancement Of Health Or Saving Of LivesDisability
Why is there no Clarity Score for Batten Disease Family Association CIO yet?
Our dataset does not yet contain the detailed filing history needed to score Batten Disease Family Association CIO.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Batten Disease Family Association CIO?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
Is Batten Disease Family Association CIO a legitimate charity?
The register data used for this profile lists Batten Disease Family Association CIO as a registered charity (number 1205650) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Batten Disease Family Association CIO's charity number?
Batten Disease Family Association CIO's charity number is 1205650. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1205650?
Search 1205650 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Batten Disease Family Association CIO do?
A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease
Does Batten Disease Family Association CIO have reviews and complaints?
CharityCompare does not host public user reviews for Batten Disease Family Association CIO. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Batten Disease Family Association CIO?
Batten Disease Family Association CIO's website listed in our register data is http://www.bdfa-uk.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Batten Disease Family Association CIO's chief executive paid?
The Charity Commission register does not name individual salaries. Batten Disease Family Association CIO's annual return for the year ending 31 December 2025 reports 1 employee paid more than £60,000. The highest reported pay band is £70,001–£80,000 (1 employee). Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Are Batten Disease Family Association CIO's trustees paid?
Batten Disease Family Association CIO's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Batten Disease Family Association CIO registered as a charity?
Batten Disease Family Association CIO was entered on the register on 9 November 2023.