Independent profile · Charity Commission for England and Wales data
Bardet-Biedl Syndrome UK (Bbs UK) is a registered charity in England & Wales. Its register classifications include general charitable purposes, the advancement of health or saving of lives, disability.
Bardet-Biedl Syndrome UK (Bbs UK) (number 1181244) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Bardet-Biedl Syndrome UK (Bbs UK) do?
BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Bardet-Biedl Syndrome UK (Bbs UK)
Answers Bardet-Biedl Syndrome UK (Bbs UK) gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are Bardet-Biedl Syndrome UK (Bbs UK)'s highest-paid staff paid?
Bardet-Biedl Syndrome UK (Bbs UK)'s annual return for the year ending 31 March 2025 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Does Bardet-Biedl Syndrome UK (Bbs UK) receive government funding?
The annual return does not answer this question for Bardet-Biedl Syndrome UK (Bbs UK). Check the accounts for grants and contracts from public bodies.
Bardet-Biedl Syndrome UK (Bbs UK) reports a trading subsidiary — a company it owns that trades and passes profits to the charity.
Can I claim Gift Aid, and are the trustees paid?
The register records Bardet-Biedl Syndrome UK (Bbs UK) as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Work out your Gift Aid
Bardet-Biedl Syndrome UK (Bbs UK)'s annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
Registration details
Registered as a charity
Also known as
Bardet-Biedl Syndrome UK; Bbs UK
Where it says it operates
Throughout England and Wales
Who it supports and how it works
Reported beneficiaries: Children/young People; People With Disabilities.
Reported activities: Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Bardet-Biedl Syndrome UK (Bbs UK) registered for?
General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability
Why is there no Clarity Score for Bardet-Biedl Syndrome UK (Bbs UK) yet?
Our dataset does not yet contain the detailed filing history needed to score Bardet-Biedl Syndrome UK (Bbs UK).
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Bardet-Biedl Syndrome UK (Bbs UK)?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
Is Bardet-Biedl Syndrome UK (Bbs UK) a legitimate charity?
The register data used for this profile lists Bardet-Biedl Syndrome UK (Bbs UK) as a registered charity (number 1181244) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Bardet-Biedl Syndrome UK (Bbs UK)'s charity number?
Bardet-Biedl Syndrome UK (Bbs UK)'s charity number is 1181244. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1181244?
Search 1181244 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Bardet-Biedl Syndrome UK (Bbs UK) do?
BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.
Does Bardet-Biedl Syndrome UK (Bbs UK) have reviews and complaints?
CharityCompare does not host public user reviews for Bardet-Biedl Syndrome UK (Bbs UK). This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Bardet-Biedl Syndrome UK (Bbs UK)?
Bardet-Biedl Syndrome UK (Bbs UK)'s website listed in our register data is http://www.bbsuk.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Bardet-Biedl Syndrome UK (Bbs UK)'s chief executive paid?
The Charity Commission register does not name individual salaries. Bardet-Biedl Syndrome UK (Bbs UK)'s annual return for the year ending 31 March 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Bardet-Biedl Syndrome UK (Bbs UK)?
The register records Bardet-Biedl Syndrome UK (Bbs UK) as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration.
Are Bardet-Biedl Syndrome UK (Bbs UK)'s trustees paid?
Bardet-Biedl Syndrome UK (Bbs UK)'s annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Bardet-Biedl Syndrome UK (Bbs UK) registered as a charity?
Bardet-Biedl Syndrome UK (Bbs UK) was entered on the register on 18 December 2018.