Bardet-Biedl Syndrome UK (Bbs UK)
Bardet-Biedl Syndrome UK (Bbs UK) is a registered charity in England & Wales working in general charitable purposes, the advancement of health or saving of lives, disability, based in Harwich.
Quick answer
What are the key facts about Bardet-Biedl Syndrome UK (Bbs UK)?
- Registered charity number
- 1181244
- Status
- Registered (active)
- Charity type
- CIO
- Location
- Harwich
- Latest income (year ending 2025-03-31)
- £395,748
- Website
- www.bbsuk.org.uk
What does Bardet-Biedl Syndrome UK (Bbs UK) do?
BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.
What causes is Bardet-Biedl Syndrome UK (Bbs UK) registered for?
Why is there no Clarity Score for Bardet-Biedl Syndrome UK (Bbs UK) yet?
The Clarity Score is computed from full financial filing history. Bardet-Biedl Syndrome UK (Bbs UK) is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. How scoring works
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Frequently asked questions
- Is Bardet-Biedl Syndrome UK (Bbs UK) a legitimate charity?
- Yes. Bardet-Biedl Syndrome UK (Bbs UK) is a legitimate registered charity (charity number 1181244) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.
- What is Bardet-Biedl Syndrome UK (Bbs UK)'s charity number?
- Bardet-Biedl Syndrome UK (Bbs UK)'s charity number is 1181244. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
- How do I check charity number 1181244?
- Search 1181244 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
- What does Bardet-Biedl Syndrome UK (Bbs UK) do?
- BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.
- Does Bardet-Biedl Syndrome UK (Bbs UK) have reviews and complaints?
- CharityCompare does not host public user reviews for Bardet-Biedl Syndrome UK (Bbs UK). This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
- How can I donate to Bardet-Biedl Syndrome UK (Bbs UK)?
- Bardet-Biedl Syndrome UK (Bbs UK)'s website is http://www.bbsuk.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.
Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the Open Government Licence v3.0. Always verify current details on the official register entry.