Registered charity · No. 1071196Charitable company
AS
Alstrom Syndrome UK
Independent profile · Charity Commission for England and Wales data
Alstrom Syndrome UK is a registered charity in England & Wales. Its register classifications include general charitable purposes, education/training, the advancement of health or saving of lives.
Alstrom Syndrome UK (number 1071196) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Alstrom Syndrome UK do?
Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Alstrom Syndrome UK
Answers Alstrom Syndrome UK gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
How much are Alstrom Syndrome UK's highest-paid staff paid?
Alstrom Syndrome UK's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000.
The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report.
Can I claim Gift Aid, and are the trustees paid?
The register does not record Alstrom Syndrome UK as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.
Alstrom Syndrome UK's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
Reported beneficiaries: Children/young People; People With Disabilities.
Reported activities: Provides Human Resources; Provides Buildings/facilities/open Space; Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Alstrom Syndrome UK registered for?
General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives
Why is there no Clarity Score for Alstrom Syndrome UK yet?
Our dataset does not yet contain the detailed filing history needed to score Alstrom Syndrome UK.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Alstrom Syndrome UK?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
The register data used for this profile lists Alstrom Syndrome UK as a registered charity (number 1071196) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Alstrom Syndrome UK's charity number?
Alstrom Syndrome UK's charity number is 1071196. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1071196?
Search 1071196 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Alstrom Syndrome UK do?
Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.
Does Alstrom Syndrome UK have reviews and complaints?
CharityCompare does not host public user reviews for Alstrom Syndrome UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Alstrom Syndrome UK?
Alstrom Syndrome UK's website listed in our register data is http://www.alstrom.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
How much is Alstrom Syndrome UK's chief executive paid?
The Charity Commission register does not name individual salaries. Alstrom Syndrome UK's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts.
Can I claim Gift Aid on a donation to Alstrom Syndrome UK?
The register does not record Alstrom Syndrome UK as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.
Are Alstrom Syndrome UK's trustees paid?
Alstrom Syndrome UK's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity.
When was Alstrom Syndrome UK registered as a charity?
Alstrom Syndrome UK was entered on the register on 25 August 1998. It is also a company registered at Companies House (company number 03557191).