Is Alstrom Syndrome Europe a legitimate charity?

The register data used for this profile lists Alstrom Syndrome Europe as a registered charity (number 1160362) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.

What is Alstrom Syndrome Europe's charity number?

Alstrom Syndrome Europe's charity number is 1160362. Check that number on the Charity Commission register or this CharityCompare profile before you donate.

How do I check charity number 1160362?

Search 1160362 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.

Does Alstrom Syndrome Europe have reviews and complaints?

CharityCompare does not host public user reviews for Alstrom Syndrome Europe. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.

How can I donate to Alstrom Syndrome Europe?

Alstrom Syndrome Europe's website listed in our register data is http://www.alstrom.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.

When was Alstrom Syndrome Europe registered as a charity?

Alstrom Syndrome Europe was entered on the register on 5 February 2015. It is also a company registered at Companies House (company number 09113143).

Registered charity · No. 1160362Charitable company

Alstrom Syndrome Europe

Independent profile · Charity Commission for England and Wales data

Alstrom Syndrome Europe is a registered charity in England & Wales. Its register classifications include general charitable purposes, the advancement of health or saving of lives, disability.

Visit charity website Check official registration

Work at Alstrom Syndrome Europe? Claim this profile free to add your own description, logo and links.

At a glance · official register

What are the key facts about Alstrom Syndrome Europe?

Reported income · year ending 2025-04-05: £0
Reported spending · year ending 2025-04-05: £0
Registered charity number: 1160362
Status in source extract: Registered
Charity type: Charitable company
Register contact address detail (not service area): Torquay
Registered for Gift Aid (HMRC): Not recorded
Website: www.alstrom.org.uk

Quick answer

Alstrom Syndrome Europe (number 1160362) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.

What does Alstrom Syndrome Europe do?

Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.

Activities reported on the official register · extract 2026-10-04.

From the annual return

Pay, income, Gift Aid and registration details for Alstrom Syndrome Europe

Answers Alstrom Syndrome Europe gave in its annual return to the Charity Commission, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.

Can I claim Gift Aid, and are the trustees paid?

The register does not record Alstrom Syndrome Europe as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.

Registration details

Registered as a charity: 5 February 2015
Company number: 09113143 (Companies House)
Also known as: As Eu
Where it says it operates: Austria · Belgium · Cyprus · Denmark · Finland · France · Germany · Greece

Who it supports and how it works

Reported beneficiaries: Children/young People; People With Disabilities; People Of A Particular Ethnic Or Racial Origin.

Reported activities: Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research; Acts As An Umbrella Or Resource Body.

Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.

What causes is Alstrom Syndrome Europe registered for?

General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability

Why is there no Clarity Score for Alstrom Syndrome Europe yet?

Our dataset does not yet contain the detailed filing history needed to score Alstrom Syndrome Europe. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. How scoring works

What should you check before donating to Alstrom Syndrome Europe?

Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.

How to read charity accounts · Explore rated charities

Is this your charity?

Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.

Claim this profile — free Visit charity website

Frequently asked questions

Is Alstrom Syndrome Europe a legitimate charity?: The register data used for this profile lists Alstrom Syndrome Europe as a registered charity (number 1160362) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Alstrom Syndrome Europe's charity number?: Alstrom Syndrome Europe's charity number is 1160362. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1160362?: Search 1160362 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Alstrom Syndrome Europe do?: Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.
Does Alstrom Syndrome Europe have reviews and complaints?: CharityCompare does not host public user reviews for Alstrom Syndrome Europe. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Alstrom Syndrome Europe?: Alstrom Syndrome Europe's website listed in our register data is http://www.alstrom.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
Can I claim Gift Aid on a donation to Alstrom Syndrome Europe?: The register does not record Alstrom Syndrome Europe as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.
When was Alstrom Syndrome Europe registered as a charity?: Alstrom Syndrome Europe was entered on the register on 5 February 2015. It is also a company registered at Companies House (company number 09113143).

Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the Open Government Licence v3.0. Always verify current details on the official register entry.