Action FCS (number 1165873) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation.
What does Action FCS do?
Raising awareness of Familial Chylomicronaemia Syndrome (FCS) and related conditions; educating patients, medical personnel and the public in general about FCS; supporting people with FCS and those affected by it to live a full, healthy and integrated life; advocating for access to excellent care and new medicines for all patients with FCS.
Activities reported on the official register · extract 2026-10-04.
From the annual return
Pay, income, Gift Aid and registration details for Action FCS
Answers Action FCS gave in its annual return to the Charity Commission for the year ending 31 December 2024, plus its register entry. A blank answer in the return is shown as not reported, never as “no”.
Can I claim Gift Aid, and are the trustees paid?
The register does not record Action FCS as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.
Action FCS's annual return for the year ending 31 December 2024 reports that no trustee received remuneration or other benefits from the charity.
Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area.
What causes is Action FCS registered for?
The Advancement Of Health Or Saving Of Lives
Why is there no Clarity Score for Action FCS yet?
Our dataset does not yet contain the detailed filing history needed to score Action FCS.
An unrated profile is a gap in our assessment, not a negative judgement about the charity.
The register facts and available annual-return disclosures above remain useful. Payment never influences a rating.
How scoring works
What should you check before donating to Action FCS?
Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation.
Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract.
Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating.
Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score.
The register data used for this profile lists Action FCS as a registered charity (number 1165873) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating.
What is Action FCS's charity number?
Action FCS's charity number is 1165873. Check that number on the Charity Commission register or this CharityCompare profile before you donate.
How do I check charity number 1165873?
Search 1165873 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.
What does Action FCS do?
Raising awareness of Familial Chylomicronaemia Syndrome (FCS) and related conditions; educating patients, medical personnel and the public in general about FCS; supporting people with FCS and those affected by it to live a full, healthy and integrated life; advocating for access to excellent care and new medicines for all patients with FCS.
Does Action FCS have reviews and complaints?
CharityCompare does not host public user reviews for Action FCS. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.
How can I donate to Action FCS?
Action FCS's website listed in our register data is http://www.actionfcs.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees.
Can I claim Gift Aid on a donation to Action FCS?
The register does not record Action FCS as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided.
Are Action FCS's trustees paid?
Action FCS's annual return for the year ending 31 December 2024 reports that no trustee received remuneration or other benefits from the charity.
What was Action FCS previously called?
The register lists this previous name for Action FCS: Lpld Alliance.
When was Action FCS registered as a charity?
Action FCS was entered on the register on 4 March 2016.