--- title: "The Tuberous Sclerosis Association rating | CharityCompare" description: "Is The Tuberous Sclerosis Association a legitimate UK charity? Clarity Score 81/100. Accounts 2024: income £657k · 67% on charitable activities. Reg 1039549." source: https://www.charitycompare.org.uk/charity/the-tuberous-sclerosis-association retrieved: 2026-08-18T02:03:15.557Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer ## Is The Tuberous Sclerosis Association a good charity? The Tuberous Sclerosis Association scores 81/100 (4 stars, Good) on CharityCompare's Clarity Score, calculated from its UK regulator filings. Its latest accounts year is 2024 (£657k total income, 67% of spending on charitable activities). This reflects financial transparency and stewardship on paper — not the real-world impact of its programmes. See the full breakdown. Exeter · UK-wide · EX2 5AZ | Reg [1039549](https://www.charitycompare.org.uk/charity/the-tuberous-sclerosis-association) | Registered charity | [Official website](https://www.tuberous-sclerosis.org/) | [Charity Commission register](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1039549) Donate ## How can you give to THE TUBEROUS SCLEROSIS ASSOCIATION? You leave CharityCompare to complete a donation on the official THE TUBEROUS SCLEROSIS ASSOCIATION form. We do not process payments or take commission. Opens their official online donation form. [Donate](https://www.tuberous-sclerosis.org/?utm_source=charitycompare&utm_medium=referral&utm_campaign=donate&utm_content=1039549) ## What does The Tuberous Sclerosis Association do? The Tuberous Sclerosis Association is a registered charity (no. 1039549) working in disability across the United Kingdom. Its latest Charity Commission filing directs 67% of spending to charitable activities, holding roughly 22 months of reserves, though its recent accounts were filed late. Reported income has been growing (≈12% a year). CharityCompare's Clarity Score rates the organisation only from public Charity Commission accounts — accountability, financial health, efficiency and community support — not the quality or impact of its programmes. Summarised from public filings — The Tuberous Sclerosis Association hasn't added its own description yet. [Work here? Add it free →](https://www.charitycompare.org.uk/claim?charity=the-tuberous-sclerosis-association) **In short:** THE TUBEROUS SCLEROSIS ASSOCIATION scores 81 out of 100 (4 stars). 67% average program spend (Latest year, disclosed years only). Review the pillar breakdown below. ## What is The Tuberous Sclerosis Association? The Tuberous Sclerosis Association has a Clarity Score of 81 out of 100 on CharityCompare (4 stars, Good). Charity Commission registration number 1039549. Status: Registered. Primary cause area: Disability. Latest accounts year 2024: total income £657k, with 67% of expenditure on charitable activities. Accounts filing: late. Reserves: approximately 22 months of operating costs. 1 filing concern(s) noted on this profile. Scores are independent and based on official filings — not a donation recommendation. Data from [Charity Commission register](https://register-of-charities.charitycommission.gov.uk/), last updated 17 July 2026. Overall score 81/100 4★ · Good Cause spend 67% latest year · charitable activities Accountability 68/100 Finance beacon Income £657k Latest year 2024 Reserves 22 mo Months of running costs Accounts filing Late Check register £8.5 raised per £1 fundraising (latest year) · 11% overhead · Website on register · Confidence: medium ## How does THE TUBEROUS SCLEROSIS ASSOCIATION compare? Clarity Score percentile against similar UK charities — the share of peers THE TUBEROUS SCLEROSIS ASSOCIATION scores higher than. Income band (£500k–£1m)52ndpercentile **Scores higher than 52% of 2,187 charities in its income band** · 81/100 vs 79 peer average (marker). Disability charities51stpercentile **Scores higher than 51% of 711 charities in this cause** · 81/100 vs 79 peer average (marker). ## How reliable is The Tuberous Sclerosis Association's data? Source Charity Commission (England & Wales) Accounts year 2024 Filing date 24 June 2026 Profile reviewed 17 July 2026 Medium confidence — some data missing or late Scores reflect the latest annual accounts on the register. Clarity Score measures how clearly the charity accounts for money in those filings — not programme impact. Contains public sector information licensed under the Open Government Licence v3.0. Sources: [Charity Commission for England and Wales](https://register-of-charities.charitycommission.gov.uk/), [Office of the Scottish Charity Regulator](https://www.oscr.org.uk/) and [Charity Commission for Northern Ireland](https://www.charitycommissionni.org.uk/). [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). ## What is The Tuberous Sclerosis Association's Beacon report? Detailed accountability and finance metrics from UK regulator filings — structured for transparency in our four-beacon report. ### Accountability & Transparency Baseline trust from filing discipline, board oversight, and declared governance policies. 68/100 | Metric | Score | Value | | --- | --- | --- | | Filing history (5 years) 100% on-time over five years = 15 pts · one late filing = 5 pts · two or more = 0 pts. | 33% | 5/15 pts | | Trustee oversight Three or more trustees on the register = 15 pts, scaled down for fewer (governance red flag below three). | 100% | 7 trustees · 15/15 pts | | Declared policies Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return. | 70% | 7/10 pts | ### Financial Health Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts. 100/100 | Metric | Score | Value | | --- | --- | --- | | Reserves (months of cash) 3–24 months = full marks, tapering on both sides · 0 months or 4+ years (hoarding) = 0 pts. | 100% | 22 months · 15/15 pts | | Income stability / growth +20% or more over the window = 10 pts · flat = 5 pts · −20% or worse = 0 pts, scaled between. | 100% | 10/10 pts · 3-year average | | Liabilities to assets 0% liabilities-to-assets = 5 pts, scaling down to 0 pts at 60%+ debt. | 100% | 2% · 5/5 pts | ### Financial Efficiency How efficiently funds reach the cause — program spend and fundraising cost ratios. 70/100 | Metric | Score | Value | | --- | --- | --- | | Program expense ratio 90%+ on charitable activities = full marks, scaling down to 0 pts at 50% or below. | 40% | 67% · 4/10 pts (3-year average) | | Fundraising efficiency ≤10p to raise £1 = full marks, scaling down to 0 pts at 40p or above (fundraising cost ÷ income). | 100% | 8p per £1 income · 10/10 pts (3-year average) | ### Community Support Grassroots backing from Charity Commission workforce data — volunteers vs paid staff. 100/100 | Metric | Score | Value | | --- | --- | --- | | Volunteer-to-staff ratio Volunteers at 2x staff or more = full marks · no volunteers = 0 pts, scaled between. | 100% | 40 volunteers / 9 staff · 10/10 pts | [How we calculate beacon scores →](https://www.charitycompare.org.uk/methodology) ## What is The Tuberous Sclerosis Association's Clarity Score? 81/100 total · Good · 4 of 5 stars Four pillars (40 + 30 + 20 + 10 points) from Charity Commission filings — see methodology for full weightings. 68/100 Accountability & Transparency 100/100 Financial Health 70/100 Financial Efficiency 100/100 Community Support ### Accountability & Transparency Baseline trust from filing discipline, board oversight, and declared governance policies. 68/100 Filing history (5 years)5/15 pts Trustee oversight7 trustees · 15/15 pts Declared policies7/10 pts ### Financial Health Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts. 100/100 Reserves (months of cash)22 months · 15/15 pts Income stability / growth10/10 pts · 3-year average Liabilities to assets2% · 5/5 pts ### Financial Efficiency How efficiently funds reach the cause — program spend and fundraising cost ratios. 70/100 Program expense ratio67% · 4/10 pts (3-year average) Fundraising efficiency8p per £1 income · 10/10 pts (3-year average) ### Community Support Grassroots backing from Charity Commission workforce data — volunteers vs paid staff. 100/100 Volunteer-to-staff ratio40 volunteers / 9 staff · 10/10 pts ## How much does The Tuberous Sclerosis Association raise and spend? Latest filed year 2024 · Source: Charity Commission filings | Category | Amount | % of spend | | --- | --- | --- | | Total income | £657k | — | | Total expenditure | £468k | — | | Charitable activities | £315k | 67% | | Fundraising | £154k | 33% | 67%On charitable activities ## Where does the money go? Latest accounts (2024) · £468k spent - Charitable activities67% · £315k - Fundraising33% · £154k ## What trust indicators does The Tuberous Sclerosis Association have? Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported. - — Accounts filed on time Filing status: late - ✓ Trustee board size (3–12) 7 trustees on the Charity Commission register - ✓ Workforce on register 9 employees · 40 volunteers (4:1 volunteer-to-staff) Fundraising Regulator Status not yet checked Separate from our financial scores — shows whether the charity follows the Code of Fundraising Practice. [Check Fundraising Regulator →](https://www.fundraisingregulator.org.uk/members/) Official register Reg 1039549 Full trustee list, accounts, and regulatory history on the Charity Commission. [View on Charity Commission →](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1039549) ### Trustees & officers - DR CHRIS KINGSWOOD - Sanjay Sethi since 2018 - Annemarie Cotton since 2019 - Dr Frances Elmslie Chair · since 2019 - Jane Rogers since 2019 - Simon John James since 2023 - Stacey Louise Rose since 2024 100 How we score charities +The Clarity Score is a 100-point rating from UK regulator filings (Charity Commission for England and Wales, OSCR and CCNI). Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10) — each scored on a continuous scale, not pass/fail cutoffs. A statutory inquiry sets the score to 0 automatically. [Full methodology →](https://www.charitycompare.org.uk/methodology) Accountability & Transparency Scored from filings 40 points — filing history (15), trustee oversight (15, scaling up to a board of three or more), declared policies (10). Financial Health Scored from filings 30 points — reserves (15, full marks 3–24 months, tapering on both sides), income stability (10), liabilities to assets (5, scaling down as debt rises). Financial Efficiency Scored from filings 20 points — program expense ratio and fundraising cost, each on a graduated scale (not a single cutoff). Kept at 20% of the total: financial-ratio scoring alone is not a reliable effectiveness signal (see "why not just an overhead ratio?" below). Community Support Scored from filings 10 points — volunteer-to-staff ratio from Charity Commission workforce data, scaling continuously up to a 2:1 ratio. Overall score Sum of all pillar points. Display stars use the same bands as the labels: 90–100 → 5★ Exceptional; 75–89 → 4★ Good; 60–74 → 3★ Needs improvement; 1–59 → 2★ Poor; 0 → not rated. ## How have The Tuberous Sclerosis Association's finances changed over five years? - Income - Spending - Cause spend Values in £ thousands · Cause spend plotted only when the filing discloses a split · Source: Charity Commission accounts ## What are the key facts about The Tuberous Sclerosis Association? Overall score 81/100 (4★) Income £657k Cause spend 67% of expenditure Reg number 1039549 Scope UK-wide Reserves 22 months Trustees 7 Accounts year 2024 Filing late ## How does THE TUBEROUS SCLEROSIS ASSOCIATION compare, and where else can you look? [Compare THE TUBEROUS SCLEROSIS ASSOCIATION with others](https://www.charitycompare.org.uk/compare-charities?ids=the-tuberous-sclerosis-association) [More disability charities](https://www.charitycompare.org.uk/browse/disability) [How we score charities](https://www.charitycompare.org.uk/methodology) ### Where THE TUBEROUS SCLEROSIS ASSOCIATION sits The causes this charity is classified under, and other charities working nearby. - [disability charities](https://www.charitycompare.org.uk/browse/disability) - [health charities](https://www.charitycompare.org.uk/browse/health) - [education charities](https://www.charitycompare.org.uk/browse/education) - [Charities in Exeter](https://www.charitycompare.org.uk/cities/exeter) ### Similar disability charities Top-rated peers by CharityCompare score - [POLKA CHILDREN'S THEATRE LIMITED](https://www.charitycompare.org.uk/charity/polka-children-s-theatre-limited) 100/100 · £3.6m - [TREWEN MEADOWS](https://www.charitycompare.org.uk/charity/trewen-meadows) 100/100 · £1.4m - [CAMBRIDGE RAPE CRISIS CENTRE](https://www.charitycompare.org.uk/charity/cambridge-rape-crisis-centre) 100/100 · £916k - [Kent Neuro Therapy Centre Limited](https://www.charitycompare.org.uk/charity/kent-neuro-therapy-centre-limited) 100/100 · £858k ## How can you share The Tuberous Sclerosis Association's rating? 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Free to use — a lightweight HTML badge or an embeddable score widget, each linking back to this independent profile and our [methodology](https://www.charitycompare.org.uk/methodology). BadgeScore widget [♥ CharityCompare Clarity Score 81/100 ★★★★★](https://www.charitycompare.org.uk/charity/the-tuberous-sclerosis-association) Lightweight HTML badge (no iframe) — paste anywhere ♥ CharityCompare Clarity Score 81/100 ★★★★★ Copy code ## What red flags does The Tuberous Sclerosis Association have? ## Frequently asked questions Common questions about The Tuberous Sclerosis Association's rating, finances, and Charity Commission status. Is The Tuberous Sclerosis Association a good charity? + The Tuberous Sclerosis Association scores 81 out of 100 (4 stars — Good) on CharityCompare's Clarity Score, our independent read of its UK regulator filings. Around 67% of its spending goes to charitable activities and its accounts are late. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate. Is The Tuberous Sclerosis Association a legitimate charity? + Yes — The Tuberous Sclerosis Association is a legitimate registered charity (charity number 1039549). Verify it on the official register: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1039549. Registration proves status; Clarity Score then summarises filing transparency on paper, not programme impact. What is The Tuberous Sclerosis Association's charity number? + The Tuberous Sclerosis Association's charity number is 1039549. Check that number on the official register (Charity Commission, OSCR or CCNI) or this CharityCompare profile before you donate — scammers sometimes reuse real numbers on fake appeals. What is The Tuberous Sclerosis Association's charity rating? + The Tuberous Sclerosis Association scores 81 out of 100 on CharityCompare (4 stars — Good). The Clarity Score V1 sums four pillars from UK regulator filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10). Stars use the same bands as those labels — 90+ is 5★ Exceptional. It is not an impact ranking. Does The Tuberous Sclerosis Association have reviews and complaints? + CharityCompare does not host public user reviews for The Tuberous Sclerosis Association. Instead you get a filing-based Clarity Score, cause spend, reserves and red flags such as late accounts (1 filing concern(s) noted on this profile). For formal complaints about a charity, contact the Charity Commission, OSCR, CCNI or the Fundraising Regulator as appropriate. How much of my donation reaches The Tuberous Sclerosis Association? + According to its 2024 regulator filing, 67% of The Tuberous Sclerosis Association's total spending went to charitable activities. That is the closest official figure to "how much of your donation reaches the cause" — it is an average across all spending in the filing, not a pound-by-pound breakdown of an individual gift. What are The Tuberous Sclerosis Association's overheads? + According to its 2024 regulator filing, fundraising costs were about 33% of total expenditure and combined overheads (fundraising plus governance) were about 11% of total expenditure at The Tuberous Sclerosis Association. The filings CharityCompare uses do not publish CEO or senior-staff pay, so we cannot say what The Tuberous Sclerosis Association's chief executive is paid — where disclosure rules apply, senior pay appears in the trustees' annual report on the Charity Commission register. How much income does The Tuberous Sclerosis Association receive? + The Tuberous Sclerosis Association reported £657k total income in its 2024 accounts, based on UK regulator filings. Five-year trend: growing. Are The Tuberous Sclerosis Association's accounts up to date? + Filing status: late (last filing 2026-06-24). CharityCompare flags late or missing accounts separately from the financial score. Where is The Tuberous Sclerosis Association based? + The Tuberous Sclerosis Association is listed at Exeter · UK-wide · EX2 5AZ and operates UK-wide, focused on disability. How does CharityCompare score The Tuberous Sclerosis Association? + We calculate a Clarity Score of 0–100 from four pillars in The Tuberous Sclerosis Association's regulator filings: Accountability & Transparency (40 points — filing history, trustees, policies), Financial Health (30 — reserves, income trend, debt), Financial Efficiency (20 — cause spend and fundraising cost, on a graduated scale) and Community Support (10 — volunteer-to-staff ratio). An open statutory inquiry scores 0. The score measures reporting on paper, not programme impact. CharityCompare is free for donors, takes no commission on donations, and scores cannot be bought. How often is this page updated? + This profile was last updated on 17 July 2026 from the latest UK regulator data available to CharityCompare, and The Tuberous Sclerosis Association's most recent accounts cover 2024. Scores and figures refresh whenever we re-ingest the register, so the page reflects our latest data pull rather than a one-off review.