--- title: "UK Lysosomal Storage Disorder Collaborative — charity 1201132 | CharityCompare" description: "UK Lysosomal Storage Disorder Collaborative (charity 1201132): income £40,000 (2025). Registration, accounts, Gift Aid and official sources." source: https://www.charitycompare.org.uk/charity/uk-lysosomal-storage-disorder-collaborative retrieved: 2026-10-06T23:30:53.618Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1201132CIO UL # UK Lysosomal Storage Disorder Collaborative Independent profile · Charity Commission for England and Wales data UK Lysosomal Storage Disorder Collaborative is a registered charity in England & Wales. Its register classifications include education/training, the advancement of health or saving of lives. Register extract 2026-10-04 · Not yet rated [Visit charity website](https://www.lsdcollaborative.org.uk/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1201132&subId=0) Work at UK Lysosomal Storage Disorder Collaborative? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=uk-lysosomal-storage-disorder-collaborative&type=claim&name=UK%20Lysosomal%20Storage%20Disorder%20Collaborative) to add your own description, logo and links. At a glance · official register ## What are the key facts about UK Lysosomal Storage Disorder Collaborative? Reported income · year ending 2025-12-31 £40,000 Reported spending · year ending 2025-12-31 £18,299 Registered charity number 1201132 Status in source extract Registered Charity type CIO Register contact address detail (not service area) Repton Place Registered for Gift Aid (HMRC) Not recorded Website [www.lsdcollaborative.org.uk](https://www.lsdcollaborative.org.uk/) Quick answer UK Lysosomal Storage Disorder Collaborative (number 1201132) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does UK Lysosomal Storage Disorder Collaborative do? The UK Lysosomal Storage Disorder Collaborative (LSD Collaborative) was established to advance health, relieve sickness and enhance the wellbeing of those affected by LSDs and other rare disorders, plus their families and carers, to advance education and to stimulate the interest in all matters concerning these diseases, anywhere in the UK and/or overseas. Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for UK Lysosomal Storage Disorder Collaborative Answers UK Lysosomal Storage Disorder Collaborative gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### Can I claim Gift Aid, and are the trustees paid? The register does not record UK Lysosomal Storage Disorder Collaborative as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided. UK Lysosomal Storage Disorder Collaborative's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 24 November 2022 Also known as Lsd Collaborative Where it says it operates Throughout England and Wales ## Who it supports and how it works **Reported beneficiaries:** People With Disabilities; Other Charities Or Voluntary Bodies; The General Public/mankind. **Reported activities:** Provides Advocacy/advice/information; Acts As An Umbrella Or Resource Body. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is UK Lysosomal Storage Disorder Collaborative registered for? Education/trainingThe Advancement Of Health Or Saving Of Lives ## Why is there no Clarity Score for UK Lysosomal Storage Disorder Collaborative yet? Our dataset does not yet contain the detailed filing history needed to score UK Lysosomal Storage Disorder Collaborative. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to UK Lysosomal Storage Disorder Collaborative? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=uk-lysosomal-storage-disorder-collaborative&type=claim&name=UK%20Lysosomal%20Storage%20Disorder%20Collaborative) [Visit charity website](https://www.lsdcollaborative.org.uk/) ## Frequently asked questions Is UK Lysosomal Storage Disorder Collaborative a legitimate charity? The register data used for this profile lists UK Lysosomal Storage Disorder Collaborative as a registered charity (number 1201132) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is UK Lysosomal Storage Disorder Collaborative's charity number? UK Lysosomal Storage Disorder Collaborative's charity number is 1201132. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1201132? Search 1201132 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does UK Lysosomal Storage Disorder Collaborative do? The UK Lysosomal Storage Disorder Collaborative (LSD Collaborative) was established to advance health, relieve sickness and enhance the wellbeing of those affected by LSDs and other rare disorders, plus their families and carers, to advance education and to stimulate the interest in all matters concerning these diseases, anywhere in the UK and/or overseas. Does UK Lysosomal Storage Disorder Collaborative have reviews and complaints? CharityCompare does not host public user reviews for UK Lysosomal Storage Disorder Collaborative. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to UK Lysosomal Storage Disorder Collaborative? UK Lysosomal Storage Disorder Collaborative's website listed in our register data is https://www.lsdcollaborative.org.uk/. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. Can I claim Gift Aid on a donation to UK Lysosomal Storage Disorder Collaborative? The register does not record UK Lysosomal Storage Disorder Collaborative as registered with HMRC for Gift Aid. Ask the charity before assuming a donation can be Gift Aided. Are UK Lysosomal Storage Disorder Collaborative's trustees paid? UK Lysosomal Storage Disorder Collaborative's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity. When was UK Lysosomal Storage Disorder Collaborative registered as a charity? UK Lysosomal Storage Disorder Collaborative was entered on the register on 24 November 2022. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1201132&subId=0).