--- title: "The Lowe Syndrome Trust — charity 1081241 | CharityCompare" description: "The Lowe Syndrome Trust (charity 1081241): income £19,707 (2025). Check registration, accounts, Gift Aid and official sources on an independent UK profile." source: https://www.charitycompare.org.uk/charity/the-lowe-syndrome-trust retrieved: 2026-10-09T13:13:38.918Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1081241 LS # The Lowe Syndrome Trust Independent profile · Charity Commission for England and Wales data The Lowe Syndrome Trust is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives, disability. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.lowetrust.org.uk/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1081241&subId=0) Work at The Lowe Syndrome Trust? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=the-lowe-syndrome-trust&type=claim&name=The%20Lowe%20Syndrome%20Trust) to add your own description, logo and links. At a glance · official register ## What are the key facts about The Lowe Syndrome Trust? Reported income · year ending 2025-06-30 £19,707 Reported spending · year ending 2025-06-30 £49,414 Registered charity number 1081241 Status in source extract Registered Charity type Other Register contact address detail (not service area) 673 Finchley Road Registered for Gift Aid (HMRC) Yes Website [www.lowetrust.org.uk](http://www.lowetrust.org.uk/) Quick answer The Lowe Syndrome Trust (number 1081241) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does The Lowe Syndrome Trust do? TO RAISE AWARENESS OF LOWE SYNDROME, HELP FAMILIES INCLUSIVENESS AND TO STIMULATE GLOBAL MEDICAL RESEARCH FOR BETTER TREATMENT. Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for The Lowe Syndrome Trust Answers The Lowe Syndrome Trust gave in its annual return to the Charity Commission for the year ending 30 June 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### How much are The Lowe Syndrome Trust's highest-paid staff paid? The Lowe Syndrome Trust's annual return for the year ending 30 June 2025 reports no employees paid more than £60,000. The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report. ### Can I claim Gift Aid, and are the trustees paid? The register records The Lowe Syndrome Trust as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) The Lowe Syndrome Trust's annual return for the year ending 30 June 2025 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 23 June 2000 Also known as Lowe Syndrome Trust; Lst Where it says it operates Throughout England and Wales · Italy · United States ## Who it supports and how it works **Reported beneficiaries:** Children/young People; People With Disabilities; The General Public/mankind. **Reported activities:** Makes Grants To Organisations; Provides Advocacy/advice/information; Sponsors Or Undertakes Research; Acts As An Umbrella Or Resource Body. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is The Lowe Syndrome Trust registered for? The Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for The Lowe Syndrome Trust yet? Our dataset does not yet contain the detailed filing history needed to score The Lowe Syndrome Trust. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to The Lowe Syndrome Trust? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=the-lowe-syndrome-trust&type=claim&name=The%20Lowe%20Syndrome%20Trust) [Visit charity website](http://www.lowetrust.org.uk/) ## Frequently asked questions Is The Lowe Syndrome Trust a legitimate charity? The register data used for this profile lists The Lowe Syndrome Trust as a registered charity (number 1081241) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is The Lowe Syndrome Trust's charity number? The Lowe Syndrome Trust's charity number is 1081241. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1081241? Search 1081241 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does The Lowe Syndrome Trust do? TO RAISE AWARENESS OF LOWE SYNDROME, HELP FAMILIES INCLUSIVENESS AND TO STIMULATE GLOBAL MEDICAL RESEARCH FOR BETTER TREATMENT. Does The Lowe Syndrome Trust have reviews and complaints? CharityCompare does not host public user reviews for The Lowe Syndrome Trust. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to The Lowe Syndrome Trust? The Lowe Syndrome Trust's website listed in our register data is http://www.lowetrust.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. How much is The Lowe Syndrome Trust's chief executive paid? The Charity Commission register does not name individual salaries. The Lowe Syndrome Trust's annual return for the year ending 30 June 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts. Can I claim Gift Aid on a donation to The Lowe Syndrome Trust? The register records The Lowe Syndrome Trust as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are The Lowe Syndrome Trust's trustees paid? The Lowe Syndrome Trust's annual return for the year ending 30 June 2025 reports that no trustee received remuneration or other benefits from the charity. When was The Lowe Syndrome Trust registered as a charity? The Lowe Syndrome Trust was entered on the register on 23 June 2000. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1081241&subId=0).