--- title: "Stickler Syndrome UK — charity 1060421 | CharityCompare" description: "Stickler Syndrome UK (charity 1060421): income £42,754 (2025). Check registration, accounts, Gift Aid and official sources on an independent UK profile." source: https://www.charitycompare.org.uk/charity/stickler-syndrome-uk retrieved: 2026-10-08T18:17:11.462Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1060421 SS # Stickler Syndrome UK Independent profile · Charity Commission for England and Wales data Stickler Syndrome UK is a registered charity in England & Wales. Its register classifications include general charitable purposes, education/training, the advancement of health or saving of lives. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.stickler.org.uk/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1060421&subId=0) Work at Stickler Syndrome UK? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=stickler-syndrome-uk&type=claim&name=Stickler%20Syndrome%20UK) to add your own description, logo and links. At a glance · official register ## What are the key facts about Stickler Syndrome UK? Reported income · year ending 2025-09-30 £42,754 Reported spending · year ending 2025-09-30 £57,289 Registered charity number 1060421 Status in source extract Registered Charity type Other Register contact address detail (not service area) Maidstone Registered for Gift Aid (HMRC) Yes Website [www.stickler.org.uk](http://www.stickler.org.uk/) Quick answer Stickler Syndrome UK (number 1060421) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Stickler Syndrome UK do? Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline. Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Stickler Syndrome UK Answers Stickler Syndrome UK gave in its annual return to the Charity Commission for the year ending 30 September 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### Can I claim Gift Aid, and are the trustees paid? The register records Stickler Syndrome UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) Stickler Syndrome UK's annual return for the year ending 30 September 2025 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 28 January 1997 Also known as David Pitcher Trust for Young Persons; Stickler Syndrome Charitable Trust Previous names on the register Stickler Syndrome Support Group Where it says it operates Throughout England and Wales · Scotland · Northern Ireland · Ireland ## Who it supports and how it works **Reported beneficiaries:** Children/young People; Elderly/old People; People With Disabilities; Other Charities Or Voluntary Bodies; Other Defined Groups; The General Public/mankind. **Reported activities:** Provides Advocacy/advice/information; Other Charitable Activities. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Stickler Syndrome UK registered for? General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives ## Why is there no Clarity Score for Stickler Syndrome UK yet? Our dataset does not yet contain the detailed filing history needed to score Stickler Syndrome UK. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Stickler Syndrome UK? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=stickler-syndrome-uk&type=claim&name=Stickler%20Syndrome%20UK) [Visit charity website](http://www.stickler.org.uk/) ## Frequently asked questions Is Stickler Syndrome UK a legitimate charity? The register data used for this profile lists Stickler Syndrome UK as a registered charity (number 1060421) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Stickler Syndrome UK's charity number? Stickler Syndrome UK's charity number is 1060421. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1060421? Search 1060421 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Stickler Syndrome UK do? Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline. Does Stickler Syndrome UK have reviews and complaints? CharityCompare does not host public user reviews for Stickler Syndrome UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Stickler Syndrome UK? Stickler Syndrome UK's website listed in our register data is http://www.stickler.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. Can I claim Gift Aid on a donation to Stickler Syndrome UK? The register records Stickler Syndrome UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are Stickler Syndrome UK's trustees paid? Stickler Syndrome UK's annual return for the year ending 30 September 2025 reports that no trustee received remuneration or other benefits from the charity. What was Stickler Syndrome UK previously called? The register lists this previous name for Stickler Syndrome UK: Stickler Syndrome Support Group. When was Stickler Syndrome UK registered as a charity? Stickler Syndrome UK was entered on the register on 28 January 1997. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1060421&subId=0).