--- title: "Shwachman Diamond Syndrome UK — charity 1164269 | CharityCompare" description: "Shwachman Diamond Syndrome UK (charity 1164269): income £56,700 (2025). Registration, accounts, Gift Aid and official sources." source: https://www.charitycompare.org.uk/charity/shwachman-diamond-syndrome-uk retrieved: 2026-10-07T16:03:38.585Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1164269CIO SD # Shwachman Diamond Syndrome UK Independent profile · Charity Commission for England and Wales data Shwachman Diamond Syndrome UK is a registered charity in England & Wales. Its register classifications include general charitable purposes, education/training, the advancement of health or saving of lives. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.sdsuk.org/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1164269&subId=0) Work at Shwachman Diamond Syndrome UK? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=shwachman-diamond-syndrome-uk&type=claim&name=Shwachman%20Diamond%20Syndrome%20UK) to add your own description, logo and links. At a glance · official register ## What are the key facts about Shwachman Diamond Syndrome UK? Reported income · year ending 2025-10-31 £56,700 Reported spending · year ending 2025-10-31 £25,719 Registered charity number 1164269 Status in source extract Registered Charity type CIO Register contact address detail (not service area) Washingborough Registered for Gift Aid (HMRC) Yes Website [www.sdsuk.org](http://www.sdsuk.org/) Quick answer Shwachman Diamond Syndrome UK (number 1164269) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Shwachman Diamond Syndrome UK do? To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public. Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Shwachman Diamond Syndrome UK Answers Shwachman Diamond Syndrome UK gave in its annual return to the Charity Commission for the year ending 31 October 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### How much are Shwachman Diamond Syndrome UK's highest-paid staff paid? Shwachman Diamond Syndrome UK's annual return for the year ending 31 October 2025 reports no employees paid more than £60,000. The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report. ### Can I claim Gift Aid, and are the trustees paid? The register records Shwachman Diamond Syndrome UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) Shwachman Diamond Syndrome UK's annual return for the year ending 31 October 2025 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 5 November 2015 Also known as Sdsuk Where it says it operates Throughout England and Wales ## Who it supports and how it works **Reported beneficiaries:** Children/young People; People With Disabilities. **Reported activities:** Makes Grants To Individuals; Makes Grants To Organisations; Provides Human Resources; Provides Advocacy/advice/information; Sponsors Or Undertakes Research. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Shwachman Diamond Syndrome UK registered for? General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of Lives ## Why is there no Clarity Score for Shwachman Diamond Syndrome UK yet? Our dataset does not yet contain the detailed filing history needed to score Shwachman Diamond Syndrome UK. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Shwachman Diamond Syndrome UK? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=shwachman-diamond-syndrome-uk&type=claim&name=Shwachman%20Diamond%20Syndrome%20UK) [Visit charity website](http://www.sdsuk.org/) ## Frequently asked questions Is Shwachman Diamond Syndrome UK a legitimate charity? The register data used for this profile lists Shwachman Diamond Syndrome UK as a registered charity (number 1164269) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Shwachman Diamond Syndrome UK's charity number? Shwachman Diamond Syndrome UK's charity number is 1164269. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1164269? Search 1164269 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Shwachman Diamond Syndrome UK do? To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public. Does Shwachman Diamond Syndrome UK have reviews and complaints? CharityCompare does not host public user reviews for Shwachman Diamond Syndrome UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Shwachman Diamond Syndrome UK? Shwachman Diamond Syndrome UK's website listed in our register data is http://www.sdsuk.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. How much is Shwachman Diamond Syndrome UK's chief executive paid? The Charity Commission register does not name individual salaries. Shwachman Diamond Syndrome UK's annual return for the year ending 31 October 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts. Can I claim Gift Aid on a donation to Shwachman Diamond Syndrome UK? The register records Shwachman Diamond Syndrome UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are Shwachman Diamond Syndrome UK's trustees paid? Shwachman Diamond Syndrome UK's annual return for the year ending 31 October 2025 reports that no trustee received remuneration or other benefits from the charity. When was Shwachman Diamond Syndrome UK registered as a charity? Shwachman Diamond Syndrome UK was entered on the register on 5 November 2015. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1164269&subId=0).