--- title: "Ring20 Research and Support UK CIO — charity 1165651 | CharityCompare" description: "Ring20 Research and Support UK CIO (charity 1165651): income £37,103 (2025). Registration, accounts, Gift Aid and official sources." source: https://www.charitycompare.org.uk/charity/ring20-research-and-support-uk-cio retrieved: 2026-10-07T07:06:27.793Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1165651CIO RR # Ring20 Research and Support UK CIO Independent profile · Charity Commission for England and Wales data Ring20 Research and Support UK CIO is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives, disability. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.ring20researchsupport.co.uk/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1165651&subId=0) Work at Ring20 Research and Support UK CIO? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=ring20-research-and-support-uk-cio&type=claim&name=Ring20%20Research%20and%20Support%20UK%20CIO) to add your own description, logo and links. At a glance · official register ## What are the key facts about Ring20 Research and Support UK CIO? Reported income · year ending 2025-03-31 £37,103 Reported spending · year ending 2025-03-31 £35,758 Registered charity number 1165651 Status in source extract Registered Charity type CIO Register contact address detail (not service area) Unit 13 Freeland Park Registered for Gift Aid (HMRC) Yes Website [www.ring20researchsupport.co.uk](http://www.ring20researchsupport.co.uk/) Quick answer Ring20 Research and Support UK CIO (number 1165651) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Ring20 Research and Support UK CIO do? We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease. Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Ring20 Research and Support UK CIO Answers Ring20 Research and Support UK CIO gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### How much are Ring20 Research and Support UK CIO's highest-paid staff paid? Ring20 Research and Support UK CIO's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000. The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report. ### Can I claim Gift Aid, and are the trustees paid? The register records Ring20 Research and Support UK CIO as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) Ring20 Research and Support UK CIO's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 19 February 2016 Where it says it operates Throughout England and Wales · Scotland · Northern Ireland ## Who it supports and how it works **Reported beneficiaries:** Children/young People; People With Disabilities. **Reported activities:** Provides Services; Provides Advocacy/advice/information. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Ring20 Research and Support UK CIO registered for? The Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for Ring20 Research and Support UK CIO yet? Our dataset does not yet contain the detailed filing history needed to score Ring20 Research and Support UK CIO. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Ring20 Research and Support UK CIO? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=ring20-research-and-support-uk-cio&type=claim&name=Ring20%20Research%20and%20Support%20UK%20CIO) [Visit charity website](http://www.ring20researchsupport.co.uk/) ## Frequently asked questions Is Ring20 Research and Support UK CIO a legitimate charity? The register data used for this profile lists Ring20 Research and Support UK CIO as a registered charity (number 1165651) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Ring20 Research and Support UK CIO's charity number? Ring20 Research and Support UK CIO's charity number is 1165651. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1165651? Search 1165651 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Ring20 Research and Support UK CIO do? We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease. Does Ring20 Research and Support UK CIO have reviews and complaints? CharityCompare does not host public user reviews for Ring20 Research and Support UK CIO. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Ring20 Research and Support UK CIO? Ring20 Research and Support UK CIO's website listed in our register data is http://www.ring20researchsupport.co.uk/. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. How much is Ring20 Research and Support UK CIO's chief executive paid? The Charity Commission register does not name individual salaries. Ring20 Research and Support UK CIO's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts. Can I claim Gift Aid on a donation to Ring20 Research and Support UK CIO? The register records Ring20 Research and Support UK CIO as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are Ring20 Research and Support UK CIO's trustees paid? Ring20 Research and Support UK CIO's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity. When was Ring20 Research and Support UK CIO registered as a charity? Ring20 Research and Support UK CIO was entered on the register on 19 February 2016. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1165651&subId=0).