--- title: "Pten UK and Ireland Patient Group — charity 1172205 | CharityCompare" description: "Pten UK and Ireland Patient Group (charity 1172205): income £47,904 (2024). Registration, accounts, Gift Aid and official sources." source: https://www.charitycompare.org.uk/charity/pten-uk-and-ireland-patient-group retrieved: 2026-10-07T19:44:02.546Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1172205CIO PU # Pten UK and Ireland Patient Group Independent profile · Charity Commission for England and Wales data Pten UK and Ireland Patient Group is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives, disability. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.ptenuki.org/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1172205&subId=0) Work at Pten UK and Ireland Patient Group? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=pten-uk-and-ireland-patient-group&type=claim&name=Pten%20UK%20and%20Ireland%20Patient%20Group) to add your own description, logo and links. At a glance · official register ## What are the key facts about Pten UK and Ireland Patient Group? Reported income · year ending 2024-12-31 £47,904 Reported spending · year ending 2024-12-31 £29,236 Registered charity number 1172205 Status in source extract Registered Charity type CIO Register contact address detail (not service area) Hartley Wintney Registered for Gift Aid (HMRC) Yes Website [www.ptenuki.org](http://www.ptenuki.org/) Quick answer Pten UK and Ireland Patient Group (number 1172205) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Pten UK and Ireland Patient Group do? Promote, protect and improve healthcare of persons affected by PTEN Hamatoma Tumour SyndromeSupport and promote research into the Syndrome Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Pten UK and Ireland Patient Group Answers Pten UK and Ireland Patient Group gave in its annual return to the Charity Commission for the year ending 31 December 2024, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### How much are Pten UK and Ireland Patient Group's highest-paid staff paid? Pten UK and Ireland Patient Group's annual return for the year ending 31 December 2024 reports no employees paid more than £60,000. The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report. ### Can I claim Gift Aid, and are the trustees paid? The register records Pten UK and Ireland Patient Group as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) Pten UK and Ireland Patient Group's annual return for the year ending 31 December 2024 reports that one or more trustees received payments or other benefits (payments for providing services). Charity law allows this only in limited circumstances; the trustees' annual report should explain it. ### Registration details Registered as a charity 22 March 2017 Where it says it operates Throughout England and Wales · Ireland · Scotland · Northern Ireland ## Who it supports and how it works **Reported beneficiaries:** Children/young People; Elderly/old People; People With Disabilities. **Reported activities:** Provides Advocacy/advice/information; Sponsors Or Undertakes Research. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Pten UK and Ireland Patient Group registered for? The Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for Pten UK and Ireland Patient Group yet? Our dataset does not yet contain the detailed filing history needed to score Pten UK and Ireland Patient Group. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Pten UK and Ireland Patient Group? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=pten-uk-and-ireland-patient-group&type=claim&name=Pten%20UK%20and%20Ireland%20Patient%20Group) [Visit charity website](http://www.ptenuki.org/) ## Frequently asked questions Is Pten UK and Ireland Patient Group a legitimate charity? The register data used for this profile lists Pten UK and Ireland Patient Group as a registered charity (number 1172205) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Pten UK and Ireland Patient Group's charity number? Pten UK and Ireland Patient Group's charity number is 1172205. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1172205? Search 1172205 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Pten UK and Ireland Patient Group do? Promote, protect and improve healthcare of persons affected by PTEN Hamatoma Tumour SyndromeSupport and promote research into the Syndrome Does Pten UK and Ireland Patient Group have reviews and complaints? CharityCompare does not host public user reviews for Pten UK and Ireland Patient Group. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Pten UK and Ireland Patient Group? Pten UK and Ireland Patient Group's website listed in our register data is http://www.ptenuki.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. How much is Pten UK and Ireland Patient Group's chief executive paid? The Charity Commission register does not name individual salaries. Pten UK and Ireland Patient Group's annual return for the year ending 31 December 2024 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts. Can I claim Gift Aid on a donation to Pten UK and Ireland Patient Group? The register records Pten UK and Ireland Patient Group as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are Pten UK and Ireland Patient Group's trustees paid? Pten UK and Ireland Patient Group's annual return for the year ending 31 December 2024 reports that one or more trustees received payments or other benefits (payments for providing services). Charity law allows this only in limited circumstances; the trustees' annual report should explain it. When was Pten UK and Ireland Patient Group registered as a charity? Pten UK and Ireland Patient Group was entered on the register on 22 March 2017. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1172205&subId=0).