--- title: "Primary Ciliary Dyskinesia Support UK — charity 1207340 | CharityCompare" description: "Primary Ciliary Dyskinesia Support UK (charity 1207340). Check registration, accounts, Gift Aid and official sources on an independent UK profile." source: https://www.charitycompare.org.uk/charity/primary-ciliary-dyskinesia-support-uk-2 retrieved: 2026-10-07T18:12:03.214Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1207340CIO PC # Primary Ciliary Dyskinesia Support UK Independent profile · Charity Commission for England and Wales data Primary Ciliary Dyskinesia Support UK is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives. Register extract 2026-10-04 · Not yet rated [Visit charity website](https://pcdsupport.org.uk/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1207340&subId=0) Work at Primary Ciliary Dyskinesia Support UK? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=primary-ciliary-dyskinesia-support-uk-2&type=claim&name=Primary%20Ciliary%20Dyskinesia%20Support%20UK) to add your own description, logo and links. At a glance · official register ## What are the key facts about Primary Ciliary Dyskinesia Support UK? Reported income · year ending 2024-12-31 £0 Reported spending · year ending 2024-12-31 £0 Registered charity number 1207340 Status in source extract Registered Charity type CIO Register contact address detail (not service area) 13 Freeland Park Registered for Gift Aid (HMRC) Yes Website [pcdsupport.org.uk](https://pcdsupport.org.uk/) Quick answer Primary Ciliary Dyskinesia Support UK (number 1207340) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Primary Ciliary Dyskinesia Support UK do? 1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care. Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Primary Ciliary Dyskinesia Support UK Answers Primary Ciliary Dyskinesia Support UK gave in its annual return to the Charity Commission for the year ending 31 December 2024, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### Can I claim Gift Aid, and are the trustees paid? The register records Primary Ciliary Dyskinesia Support UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) Primary Ciliary Dyskinesia Support UK's annual return for the year ending 31 December 2024 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 6 March 2024 Also known as Pcd Support UK Where it says it operates Throughout England · Scotland · Northern Ireland ## Who it supports and how it works **Reported beneficiaries:** People With Disabilities. **Reported activities:** Makes Grants To Individuals; Makes Grants To Organisations; Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research; Acts As An Umbrella Or Resource Body. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Primary Ciliary Dyskinesia Support UK registered for? The Advancement Of Health Or Saving Of Lives ## Why is there no Clarity Score for Primary Ciliary Dyskinesia Support UK yet? Our dataset does not yet contain the detailed filing history needed to score Primary Ciliary Dyskinesia Support UK. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Primary Ciliary Dyskinesia Support UK? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=primary-ciliary-dyskinesia-support-uk-2&type=claim&name=Primary%20Ciliary%20Dyskinesia%20Support%20UK) [Visit charity website](https://pcdsupport.org.uk/) ## Frequently asked questions Is Primary Ciliary Dyskinesia Support UK a legitimate charity? The register data used for this profile lists Primary Ciliary Dyskinesia Support UK as a registered charity (number 1207340) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Primary Ciliary Dyskinesia Support UK's charity number? Primary Ciliary Dyskinesia Support UK's charity number is 1207340. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1207340? Search 1207340 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Primary Ciliary Dyskinesia Support UK do? 1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care. Does Primary Ciliary Dyskinesia Support UK have reviews and complaints? CharityCompare does not host public user reviews for Primary Ciliary Dyskinesia Support UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Primary Ciliary Dyskinesia Support UK? Primary Ciliary Dyskinesia Support UK's website listed in our register data is https://pcdsupport.org.uk/. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. Can I claim Gift Aid on a donation to Primary Ciliary Dyskinesia Support UK? The register records Primary Ciliary Dyskinesia Support UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are Primary Ciliary Dyskinesia Support UK's trustees paid? Primary Ciliary Dyskinesia Support UK's annual return for the year ending 31 December 2024 reports that no trustee received remuneration or other benefits from the charity. When was Primary Ciliary Dyskinesia Support UK registered as a charity? Primary Ciliary Dyskinesia Support UK was entered on the register on 6 March 2024. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1207340&subId=0).