--- title: "Pitt Hopkins UK — charity 1167153 accounts | CharityCompare" description: "Pitt Hopkins UK (charity 1167153): income £22,915 (2025). Check registration, accounts, Gift Aid and official sources on an independent UK profile." source: https://www.charitycompare.org.uk/charity/pitt-hopkins-uk retrieved: 2026-10-07T10:44:58.625Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1167153CIO PH # Pitt Hopkins UK Independent profile · Charity Commission for England and Wales data Pitt Hopkins UK is a registered charity in England & Wales. Its register classifications include disability. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.pitthopkins.org.uk/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1167153&subId=0) Work at Pitt Hopkins UK? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=pitt-hopkins-uk&type=claim&name=Pitt%20Hopkins%20UK) to add your own description, logo and links. At a glance · official register ## What are the key facts about Pitt Hopkins UK? Reported income · year ending 2025-12-31 £22,915 Reported spending · year ending 2025-12-31 £4,312 Registered charity number 1167153 Status in source extract Registered Charity type CIO Register contact address detail (not service area) Horsham Registered for Gift Aid (HMRC) Yes Website [www.pitthopkins.org.uk](http://www.pitthopkins.org.uk/) Quick answer Pitt Hopkins UK (number 1167153) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Pitt Hopkins UK do? Pitt Hopkins UK aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Pitt Hopkins UK Answers Pitt Hopkins UK gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### Can I claim Gift Aid, and are the trustees paid? The register records Pitt Hopkins UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) Pitt Hopkins UK's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 17 May 2016 Also known as Pitt Hopkins Syndrome UK Where it says it operates Throughout England and Wales · Ireland · Scotland · Northern Ireland ## Who it supports and how it works **Reported beneficiaries:** People With Disabilities; The General Public/mankind. **Reported activities:** Provides Advocacy/advice/information; Sponsors Or Undertakes Research. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Pitt Hopkins UK registered for? Disability ## Why is there no Clarity Score for Pitt Hopkins UK yet? Our dataset does not yet contain the detailed filing history needed to score Pitt Hopkins UK. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Pitt Hopkins UK? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=pitt-hopkins-uk&type=claim&name=Pitt%20Hopkins%20UK) [Visit charity website](http://www.pitthopkins.org.uk/) ## Frequently asked questions Is Pitt Hopkins UK a legitimate charity? The register data used for this profile lists Pitt Hopkins UK as a registered charity (number 1167153) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Pitt Hopkins UK's charity number? Pitt Hopkins UK's charity number is 1167153. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1167153? Search 1167153 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Pitt Hopkins UK do? Pitt Hopkins UK aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit Does Pitt Hopkins UK have reviews and complaints? CharityCompare does not host public user reviews for Pitt Hopkins UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Pitt Hopkins UK? Pitt Hopkins UK's website listed in our register data is http://www.pitthopkins.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. Can I claim Gift Aid on a donation to Pitt Hopkins UK? The register records Pitt Hopkins UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are Pitt Hopkins UK's trustees paid? Pitt Hopkins UK's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity. When was Pitt Hopkins UK registered as a charity? Pitt Hopkins UK was entered on the register on 17 May 2016. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1167153&subId=0).