--- title: "Myotubular Trust — charity 1137177 accounts | CharityCompare" description: "Myotubular Trust (charity 1137177): income £147k (2025). Check registration, accounts, Gift Aid and official sources on an independent UK profile." source: https://www.charitycompare.org.uk/charity/myotubular-trust retrieved: 2026-10-08T04:19:06.015Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1137177Charitable company MT # Myotubular Trust Independent profile · Charity Commission for England and Wales data Myotubular Trust is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives, disability. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.myotubulartrust.org/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1137177&subId=0) Work at Myotubular Trust? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=myotubular-trust&type=claim&name=Myotubular%20Trust) to add your own description, logo and links. At a glance · official register ## What are the key facts about Myotubular Trust? Reported income · year ending 2025-12-31 £146,956 Reported spending · year ending 2025-12-31 £314,670 Registered charity number 1137177 Status in source extract Registered Charity type Charitable company Register contact address detail (not service area) London Registered for Gift Aid (HMRC) Yes Website [www.myotubulartrust.org](http://www.myotubulartrust.org/) Quick answer Myotubular Trust (number 1137177) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Myotubular Trust do? The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date. Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Myotubular Trust Answers Myotubular Trust gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### How much are Myotubular Trust's highest-paid staff paid? Myotubular Trust's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report. ### Can I claim Gift Aid, and are the trustees paid? The register records Myotubular Trust as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) Myotubular Trust's annual return for the year ending 31 December 2025 reports that one or more trustees received payments or other benefits (payments for acting as a trustee). Charity law allows this only in limited circumstances; the trustees' annual report should explain it. ### Registration details Registered as a charity 29 July 2010 Company number [07260229](https://find-and-update.company-information.service.gov.uk/company/07260229) (Companies House) Where it says it operates Throughout England and Wales ## Who it supports and how it works **Reported beneficiaries:** Children/young People; People With Disabilities. **Reported activities:** Makes Grants To Individuals; Makes Grants To Organisations; Provides Advocacy/advice/information; Sponsors Or Undertakes Research. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Myotubular Trust registered for? The Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for Myotubular Trust yet? Our dataset does not yet contain the detailed filing history needed to score Myotubular Trust. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Myotubular Trust? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=myotubular-trust&type=claim&name=Myotubular%20Trust) [Visit charity website](http://www.myotubulartrust.org/) ## Frequently asked questions Is Myotubular Trust a legitimate charity? The register data used for this profile lists Myotubular Trust as a registered charity (number 1137177) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Myotubular Trust's charity number? Myotubular Trust's charity number is 1137177. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1137177? Search 1137177 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Myotubular Trust do? The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date. Does Myotubular Trust have reviews and complaints? CharityCompare does not host public user reviews for Myotubular Trust. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Myotubular Trust? Myotubular Trust's website listed in our register data is http://www.myotubulartrust.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. How much is Myotubular Trust's chief executive paid? The Charity Commission register does not name individual salaries. Myotubular Trust's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts. Can I claim Gift Aid on a donation to Myotubular Trust? The register records Myotubular Trust as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are Myotubular Trust's trustees paid? Myotubular Trust's annual return for the year ending 31 December 2025 reports that one or more trustees received payments or other benefits (payments for acting as a trustee). Charity law allows this only in limited circumstances; the trustees' annual report should explain it. When was Myotubular Trust registered as a charity? Myotubular Trust was entered on the register on 29 July 2010. It is also a company registered at Companies House (company number 07260229). Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1137177&subId=0).